Forum Discussion
Wildplaces
8 years agoMember
Diet, exercise, lifestyle to decrease the risk of BC recurrence
I am hoping this will be a place where you will ALL share your tricks and plans, your hopes and goals for trying to be that little bit healthier each day. There is a lot of information available and it is daunting trying to sort through it.
I am not only looking for guidelines and links but for your collective practical wisdom - for recipes, for places to source food, for what gets you out of bed and fed in the morning, for what makes you go to sleep at night, and alas the holy grail for what makes you hold it calmly together during the day, while juggling treatments and home and life.
Nutritional Science here we come...seriously hoping we can put our heads together and support each other to be that little bit healthier each day.
I am not only looking for guidelines and links but for your collective practical wisdom - for recipes, for places to source food, for what gets you out of bed and fed in the morning, for what makes you go to sleep at night, and alas the holy grail for what makes you hold it calmly together during the day, while juggling treatments and home and life.
Nutritional Science here we come...seriously hoping we can put our heads together and support each other to be that little bit healthier each day.
109 Replies
- Karen_C1Member
Guys, I posted this a little while ago but I reckon it needs another run!Compelled to shout out about the benefit of exercise despite any physical limitations. I have bone and brains mets. I have always been active but last year certainly tested my resolve. I had fractures and both femurs due to the affects of a bone density drug. I now have rods in both femurs. Return to mobility was arduous as I re-fractured around the rods twice in both legs which set me back twice after surgery. To think end of 2016 I was in a wheelchair and now feeling better than ever.
I thank the team at St. Vincents who first started me with hydro therapy to get my muscles activated again which then followed with gym sessions that were designed to improve my balance and strength. At that time I registered with Plenty Valley Community Health (03 9409 8787). I am now doing two gym sessions, designed for me, under supervision out of Mill Park YMCA at a cost of $5.50 per session and so enjoying it. I put on 10kgs in 2016 through inactivity. Thus far I have chipped off 8kgs and hope to be back to my original weight soon. Had a set back with brsin surgery end of 2017 but looking forward to getting back into gym. The upshot is I am so enjoying the exercise and interacting with people and my body has become so much stronger. I now have confidence in my body which I had lost completely. If you live in the Northern Suburbs, recommend you get in touch. You will need a referral. As they say - you lose it if you don't use it. - RomlaMemberHi @Wildplaces exercise was never a favourite of mine though I didn’t mind if it was chasing a ball .I too had a busy working life and a family to look after.
It took a 76year old breast cancer veteran survivor to pull me up short about not having time to exercise.She told me she has been getting up at 6am every morning for 20 years since diagnosis to go for a one hour walk as that was the only time there were no interruptions. She does it rain or shine as it makes her feel better and more able to manage her day. She also said it required no fancy equipment just a good pair of shoes.
I walk daily for an hour and the terrain is hilly. Occasionally I miss if it’s raining or very hot.I work usually around 9 as my kids are at school and now around 4pm when they get home before dinner -it used to be after dinner but daylight saving has ended.
If I miss a walk I notice it. Walking gives me “me”time and a chance to think.My family accept this and my husband also walks now but is a lot faster.I am not fond of silence so listen to music on my phone which I have on a runner’s band on my arm.I enjoy music and drift off forgetting I am exercising.
Walking is sometimes hard because of joint pain as I am on Letrozole as my breast cancer is Er+.However I have learnt I can walk thru this after a short while and it also counters stiffness I used to have getting up in the morning.I am hoping it helps lower my cholesterol as another side effect of Letrozole has been a spike in my formerly good cholesterol.Letrozole plus I guess the whole breast cancer experience at times lowers my mood bringing on the blues and the walk releases endorphins which help with this as well.Letrozole also thins bones and as I already had osteoporosis I hope walking will help with this.
I too have read and been told about the benefits of exercise in the prevention of recurrence so that is also another reason I walk.
I also do a gentle Stretch and Balance class twice weekly involving light weights primarily to help my joints but it also has brought me laughter and fun which I also think helps.Weight bearing exercise also helps with osteoporosis .@Deanne has told us about the wonderful work The Bone Clinic and Griffith Uni in Qld are doing in this regard.
Finally I think I have become a little selfish with my time which is how I have been able to make time to fit exercise in and this is accepted by my family.But also I exercise for many reasons.
Getting back on the horse ? I fall off frequently - I get up , dust myself off and get back on again. Occasionally someone gives me a lift up.The important thing is to try - falling off is normal.
Glad to see you back! - WildplacesMemberGiovanna - thank you - it is more accurate.
(Early detection and prevention is often used when addressing screening - and few assume that having the mammogram will mean you don't get breast cancer....hence my ...)
I am encouraged by the number of visits the thread reached in a very short time.
I hope the visits were a reflection of the genuine wish of the community to be engaged in constructive conversation about lifestyle modification following any major illness but particularly breast cancer.
I look forward to hearing what the BCNA position on exercise is, and whether it aligns with the NBCF.
https://nbcf.org.au/news/research-news/two-studies-show-impact-of-exercise-on-breast-cancer/
The biggest problem - now I speak for myself alone, is trying to fit those requirements into a lifetstyle that flows and is fulfilling - ie trying to take care of myself while taking care of my family, and working, and....
It was my reason for starting the thread.
I came here to share two years after my treatment not because I looked for support but because I believe there is something we can all teach each other - a collective wisdom of survival.
I had lots of time to read on chemo last year so I know the numbers and I can read numbers ( please don't take that as anything more than I am ok with maths) - ( alas I didn't post the data on nutrition, and it goes way beyond being overweight) BUT here is the crunch - the reality test - tell me wise ladies of the BCNA - how do we make it fit in.
Did I follow it before diagnosis?? - no, I worked 80 hours per week before diagnosis and never crossed my mind I could get sick. Did that make me get BC ?? Heck no, we don't understand why although pieces of the puzzle now exist.
How do we incorporate it into life, how do we get back on the horse when we fall, how do
we change cooking for a family, how do we deal with supermarkets when perhaps we would prefer 9pm fresh open air markets and farmers...
A word on the recipes - I have many cooking books (am of that generation, like to hold something ) and still the things I cook are the things that have been taught to me by family and friends. I like a recipe that has been crafted by five different women before me.
A thread is only as good as the people who contribute to it are - to those who contributed with fragments of their lives in the hope that something might have meaning to another - thank you - if this is valuable to you please continue to post. - Giovanna_BCNAMemberHello @Wildplaces I have changed the title of this thread as requested.
- Giovanna_BCNAMemberHello everyone,
Thank you for your posts. There is evidence regarding exercise reducing the risk of breast cancer recurrence and BCNA will respond officially to this question tomorrow.
There has been lots of discussion in this thread from yesterday when I last logged in. I am sorry to read that some of you have been very upset by this discussion and as a result I will be touching base with some of you privately. We really hope that this forum is a supportive, safe and caring environment for all to post and have your say and to feel well supported.
A reminder about our community guidelines always be pleasant and treat others with respect, we appreciate that there will be many different points of views and opinions and encourage you all to be respectful of each others comments. Be mindful of the words you use when posting, own your own words. Respect other people’s views and consider your impact on others when making a contribution. We really want our members to enjoy the network so please remember that everyone's personal circumstance are different. Dont hesitate to contact myself Giovanna_BCNA or Marianne_BCNA if you have any questions or concerns. - iserbrownMember@Molly001 thanks for the support, it is much appreciated! It is my passion for helping others
- Jandy232MemberI don't think I suggested or implied that green tea would prevent breast cancer or a recurrence. Just mentioned it because the title of this post was Diet, Exercise & Lifestyle Changes to Prevent Recurrence and a lot of the research I've read indicates that it may help reduce the likelihood of recurrence. I think we all agree that the jury is still out on what causes breast cancer and it's probably a complicated combination of things and that we should never blame ourselves for getting this wretched disease, ever.
But I don't think that means we should ignore and dismiss all research that shows some promise in reducing our risks of breast cancer or any other cancer for that matter. Perhaps there are small tweaks we can make to our diets and lifestyle that really do reduce the risk. Of course there are no guarantees no matter what you do but I think these things are worth investigating and, if they do no harm, giving them a try. - iserbrownMemberKerryn McCann - goodness! I just looked it up and it was 2008!
- Patti_JMemberIt has been very interesting reading everyone's posts.
There is so much care for others displayed even though most of us are strangers to each other.
My husband asked me to mention Kerryn McCann, the dual Commonwealth Games marathon runner who died from breast cancer nearly 10 years ago aged 41. How much more exercise could a person do? How much fitter could you be? - iserbrownMemberSending you all a virtual hug xoxo