Calm before the storm
Hi all, We have our first dose-dense AC treatment this Friday for Rebecca and while we're really glad to have some sense of momentum and control now with the treatment plan, I'm trying to get organ...
Forum Discussion
Hi everyone,
@Paris_24 - that's great advice, thank you - Rebecca's folks live on 7 acres out at Toowoomba, so we might organise to head out there for a weekend of peace and quiet, although they're currently having -1° starts so it's going to be chilly there too!
We're halfway through Day 5 after round 1 and so far have been very fortunate to have minimal / manageable side effects, - that said, the biggest issue right now seems to be heartburn and indigestion, so I've started doing smaller, more bland meals and hopefully that'll help, but we've also asked the team at the RBWH for a prescription for something that might be a bit more effective than off-the-shelf Gaviscon tablets.
Other than that it seems like fatigue and bit of brain fog (having a good night's sleep seems to make all the difference) are the other main things we've noticed. Rebecca is still managing a daily walk of 1-2 KMs around the block and not missing any meals or anything which is a real testament to her resiliance.
@Coastiejas - yes, I think exercise seems to help 100%, but, as you say, we're definitely listening to Rebecca's body and if she's feeling a bit flat we don't push it at all. I believe she has a session with LGFB next week which will help with a lot of stuff too - they seem very good! With regards the Exercise Physio, I had a bit of a firm discussion with Rebecca's GP yesterday because they have basically refused to give her a referral or Care Plan without a consult - they are 35 minutes away and I'm not keen to have Bec sat in a waiting room for 45 minutes with potentially sick people etc so that her GP of 20+ years can "see her" and "discuss the options".
@GinGin - you'll be pleased to know that our ice gloves / socks arrived today and they're great quality with lots of spare ice packs, so we should be ready to go when the Taxols start in a couple of months :)
Hope you're all having a lovely week other than that and staying warm in this chilly weather!
George
@Paris_24 - that's great advice, thank you - Rebecca's folks live on 7 acres out at Toowoomba, so we might organise to head out there for a weekend of peace and quiet, although they're currently having -1° starts so it's going to be chilly there too!
We're halfway through Day 5 after round 1 and so far have been very fortunate to have minimal / manageable side effects, - that said, the biggest issue right now seems to be heartburn and indigestion, so I've started doing smaller, more bland meals and hopefully that'll help, but we've also asked the team at the RBWH for a prescription for something that might be a bit more effective than off-the-shelf Gaviscon tablets.
Other than that it seems like fatigue and bit of brain fog (having a good night's sleep seems to make all the difference) are the other main things we've noticed. Rebecca is still managing a daily walk of 1-2 KMs around the block and not missing any meals or anything which is a real testament to her resiliance.
@Coastiejas - yes, I think exercise seems to help 100%, but, as you say, we're definitely listening to Rebecca's body and if she's feeling a bit flat we don't push it at all. I believe she has a session with LGFB next week which will help with a lot of stuff too - they seem very good! With regards the Exercise Physio, I had a bit of a firm discussion with Rebecca's GP yesterday because they have basically refused to give her a referral or Care Plan without a consult - they are 35 minutes away and I'm not keen to have Bec sat in a waiting room for 45 minutes with potentially sick people etc so that her GP of 20+ years can "see her" and "discuss the options".
@GinGin - you'll be pleased to know that our ice gloves / socks arrived today and they're great quality with lots of spare ice packs, so we should be ready to go when the Taxols start in a couple of months :)
Hope you're all having a lovely week other than that and staying warm in this chilly weather!
George