Forum Discussion
magicmum
14 years agoMember
Who me ?
"Come back for another scan, there's a grey area"
That was just over 4 weeks ago, and I thought "who, me ?" I was so sure it was just a bruise from when I had fallen some weeks before, and then they started scanning in a different spot . . .
*It's very small" "we've caught it early " "you'll be fine"
There's a little part of my head that just won't let me believe those things right now.
I have a wonderful surgeon who has done the wide excision and the sentinel node biopsy (results next Tuesday) and a fabulous support network including my family, my collegues at work and my old Nursing Mothers group - we've been friends forever, nearly 30 years, and their love is astounding.
I am talking positively to myself every day, filling myself with good thoughts, moving forward. Everything so far has been very smooth, and fast. But that fear of the unknown is inescapable in the middle of the night - what if it is already somewhere else ? Is my slightly upset tummy just nerves, or something sinister ? How do I know that my aching legs are just menopausal ? How will I stop myself from bombarding my doctor wih requests for cancer scans on every part of my body ?
How do you cope with that ? Can anyone offer any thoughts ?
120 Replies
- chipmunkMember
Hi Keitha
Yes, I am taking the Somac at the moment. It does help. I still have the yucky taste in my mouth as well. Wish we all could taste food like we used to... miss it heaps. Hate that taste and feeling in the mouth..... so over it.
Finished chemo sessions of FEC and now am on Taxol for the next 9 sessions. So my tummy isn't feeling well at the moment. Had my 2nd Taxol last Friday. So taking Somac again.... so over it...
Had a horror session Friday, as they had to try 4 times to put the canulla in, as my veins decided to collapse and no blood flow. So after having the canulla in the blood test came back inconclusive that they had to put a needle in my arm to take further bloods out. So by the end of 5 "stab wounds" to the arm, my arm said "thats enough". I had pain in the arm upto my elbow, so they had to slow down the flow of chemo into my arm. I totally felt sorry for myself that day... :( ..... "Not happy Jan", as now I have heaps of bruises on my arm.
Sorry to hear that you keep having migraines. Maybe you need to let your oncologist know.
As for the dizzy spells, I was having them with real shortness of breath. My oncologist made me have another CT scan as they were worried it could have been clots on the lungs or my heart. But all came back OK. So they decided it was the chemo making me feel that way. So mention it to your oncologist as well.
Take care and keep us posted. Love and hugs Julie XX
- cocoMember
Hi guys happy to report surgery went ahead as planned last thursday, made my cast to me the night before, have looked at my scars and it doesn't bother me at all which is a surprise. Feeling tired but already at home, going to get path results next monday so I will know more then. Hope you are all coping well with whatever stage your journey is at.
- cocoMember
Hi guys happy to report surgery went ahead as planned last thursday, made my cast to me the night before, have looked at my scars and it doesn't bother me at all which is a surprise. Feeling tired but already at home, going to get path results next monday so I will know more then. Hope you are all coping well with whatever stage your journey is at.
- magicmumMember
Love the idea of a little man at the back of your throat - EXACTLY how it feels. I like images for things ! Don't you hate the taste thing, it's driving me nuts - I LOVE my food and hate not enjoying it as much.
Do let me know about slippery elm, I'm trying anything i can think of. I'm going to see my favourite acupuncturist soon cos I am sure he can help me.
Enjoy your movies.
Keitha
- magicmumMember
Love the idea of a little man at the back of your throat - EXACTLY how it feels. I like images for things ! Don't you hate the taste thing, it's driving me nuts - I LOVE my food and hate not enjoying it as much.
Do let me know about slippery elm, I'm trying anything i can think of. I'm going to see my favourite acupuncturist soon cos I am sure he can help me.
Enjoy your movies.
Keitha
- LisaGMember
OOooo wig day! Make sure you put up a pic so we can all see it ;-)
My daughter took me to Palm Cove for a coffee this morning - its actually pouring with rain at the moment but it and the wind held off just nicely for long enough for us to enjoy half an hour there before the video shop opened. So hilarious - the car park was FULL of people making use of the $1 day - and I thought it was school kids that used this shop.
Today there is a nasty little man sitting at the back of my throat (I'm sure) painting gum on the back of my tongue and changing the taste of everything and his mate is painting red spots all over my face and neck.... I picked up a heap of videos and have a mattress set up on the loungeroom floor.... this is where I'm spending today!
I have taken some slippery elm bark to help with indigestion today - I'll let you know how it goes..
looking forward to the wig pic!
- magicmumMember
Going to see the wig lady on Thursday !! I'm taking a gf who has some taste so i should be ok. Still have my hair so I'm hoping to pick something that looks like ME - my kids are saying get something different,exciting ! Hmmmm - maybe not. I need to look like ME for work.
Oooooo - exciting.
Migraine pain returned again this morning - ARRRRGGGGHHHH. But I think I've massaged and breathed it away. I reckon the antibiotic is intefering with the action of the pills I take - great :/
Otherwise feeling not too bad this morning. Had a really good night's sleep for som reason. Nice.
I hope the same for all of you, hve a good day.
Keitha
- DansBoobsMemberNo worries love, my pleasure! xxDanxx
- magicmumMember
Love it ! Ask for help and here it is, what would I do without you.
I went to see my lovely pharmacist and he gave me some Somac and recommends getting a script. I'm starting it right away.
I wondered about fluid, I think I am drinking enough and I'm trying to. I will up that and see if it helps. I hate that my mouth just tastes WRONG. No real explanation - just wrong. Anyways at least the heartburn went overnight. And the migraine finally about 2pm today.
Love ya dans
Keitha
- DansBoobsMemberKeitha go get yourself some Zantac (ranitidine) from the supermarket or chemist and ask your doctor to put you on a PPI next time round. The Zantac will work really quickly. As for the fainting spells, are you drinking enough? You might be a but dry, but I would be getting that one checked out. Good luck!