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magicmum's avatar
magicmum
Member
13 years ago

Who me ?

"Come back for another scan, there's a grey area"

That was just over 4 weeks ago, and I thought "who, me ?" I was so sure it was just a bruise from when I had fallen some weeks before, and then they started scanning in a different spot . . .

*It's very small" "we've caught it early " "you'll be fine"

There's a little part of my head that just won't let me believe those things right now.

I have a wonderful surgeon who has done the wide excision and the sentinel node biopsy (results next Tuesday) and a fabulous support network including my family, my collegues at work and my old Nursing Mothers group - we've been friends forever, nearly 30 years,  and their love is astounding.

I am talking positively to myself every day, filling myself with good thoughts, moving forward. Everything so far has been very smooth, and fast.  But that fear of the unknown is inescapable in the middle of the night - what if it is already somewhere else ? Is my slightly upset tummy just nerves, or something sinister ?  How do I know that my aching legs are just menopausal ? How will I stop myself from bombarding my doctor wih requests for cancer scans on every part of my body ?

How do you cope with that ? Can anyone offer any thoughts ?

120 Replies

  • 12 hours to go and I'll know if I have lymph involvement. I thought I was all settled and ready to go forward with either "yes" or "no" - but right now I just want it all to go away. That's normal, right ? It's only been a bit over 3 weeks but it feels like forever. I read all your posts and how much people are surviving through and feel pathetic for being such a wimp. How in the hell am I going to make it through more than this ?

    Gotta be just a bad patch - middle of the night stuff. It'll all look better in the morning.Sorry.

     

     

     

  • 12 hours to go and I'll know if I have lymph involvement. I thought I was all settled and ready to go forward with either "yes" or "no" - but right now I just want it all to go away. That's normal, right ? It's only been a bit over 3 weeks but it feels like forever. I read all your posts and how much people are surviving through and feel pathetic for being such a wimp. How in the hell am I going to make it through more than this ?

    Gotta be just a bad patch - middle of the night stuff. It'll all look better in the morning.Sorry.

     

     

     

  • 2 weeks ago I had my last treatment of 6 months of chemo. Whilst I am so glad it's behind me I am not ready to celebrate. I am still very weak and weary and my muscles are constantly aching, sometimes stiff. The doc said on Thu I was doing 'well' after I told her all this. (I have a different definition for well!) Also she said that this pain and fatigue will continue for another 3-4 weeks. I start 30 days of radiation on mon. I wonder when my hair will start growing back and when will the muscle pain ease and when do my taste buds come back 100%. Is there a general answer or does the time frame differ for every one? Having said all this I am trying to focus on the good in my life not just the hard stuff. There has been quite a few things to grieve over so far but plenty more blessings to be thankful for. I'm even grateful for a cozy bed to rest in!
  • If your nodes are clear it should be isolated and no need for further scans but you take what it is and deal with it as best you can.

    Ask your Dr. all the questions you want about anything and everything, have a list and make more as you go , you are paying their wages by the way, whether be private or public they are on your dime so to speak.

    Your friends sound great, I still have a group of girls from 32yrs ago at high school we meet  weekly and they have been my strength, hubby and daughter are great but you don't like to worry them so it's the girls or here and here is open anytime, lol. 

    Regards,

    Cheryl D

  • Hi Magicmum

    Yes, we have all been through the wait. As Tonya has said, all the symptoms are just nerves. Just try and relax and whatever the outcome, you know that the plan is there to make you better.

    Please let us know how you go and our thoughts are with you on Tuesday

    Love Julie XX

  • Hi Magicmum

    Yes, we have all been through the wait. As Tonya has said, all the symptoms are just nerves. Just try and relax and whatever the outcome, you know that the plan is there to make you better.

    Please let us know how you go and our thoughts are with you on Tuesday

    Love Julie XX

  • Thanks for that fast reply, really helped. I have lots to do this weekend so hopefully it'll be tuesday before I know it.

    I will let you know. It IS going to be CLEAR !!!

     

     

  • So sorry to hear you are going through this awful bc thing but good you've found this site.Your stomach is turning cartwheels from anxiety,that I can assure you.The waiting is the cruelist part and no amount of worrying will alter Tuesday's results.Write down all your questions for your doctor and then keep really busy and distracted ALL weekend.We have all been in that dark place where you are now.Once you know the plan you will feel much better.Hope you get clear margins and nodes.Let us know how you go.

                                    Tonya xx

  • So sorry to hear you are going through this awful bc thing but good you've found this site.Your stomach is turning cartwheels from anxiety,that I can assure you.The waiting is the cruelist part and no amount of worrying will alter Tuesday's results.Write down all your questions for your doctor and then keep really busy and distracted ALL weekend.We have all been in that dark place where you are now.Once you know the plan you will feel much better.Hope you get clear margins and nodes.Let us know how you go.

                                    Tonya xx