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hooper65's avatar
hooper65
Member
11 years ago

Totally Overwhelming

First post tried once before don't think I was successful,  techno illiterate. First mammogram ever was called back,  don't worry they said a lot of ladies get called back it's usually nothing.  Had a core biopsy they said it looked like DCIS don't worry they said most come back benign.  Went to my GP on the 19.5.15, not good news,  it's DCIS it's malignant,  high grade,  4.3cm, more than likely need a mastectomy considering the size,  high grade and small breasts.  I'm numb,  pinch me I said I felt my doctor touch my hand  I knew I wasn't dreaming.  My head was spinning it still is.  Seen the surgeon a week later,  we have decided on a lumpectomy with follow up radiation. Hopefully the excision will come back with margins clear.  Surgery booked for 23.6.15 trying to stay positive,  not easy.  Have 3 adult children,  2 of them supportive,  one amazing daughter in law,  3 gorgeous grand babies,  a supportive partner and terrific friends. My Mum passed away 2009, Dad is hiding his head in the sand.  Why do I feel so alone.  I am terrified,  the stat's don't seem to be in my favour,  question my decision daily,  I trust my surgeon knows best.  I am a nurse and see a lot worse but this does not allay my fears,  my doubts much.  I have read some of the blogs and think wow I'm not alone,  I hope I can draw some positives along my journey.  

16 Replies

  • Thank you Paula I am grateful for your words of wisdom. They say nurses are the worse patients lol, I am trying my best to take this one day at a time and be patient. 

    I am happy to hear you are doing so well, thank you again for sharing.

    Sonya

  • Thank you Jane I appreciate your response and will heed your advice. It certainly is a journey, and one that has only just begun for me. Thank you again

    Sonya x

  • Hi there, 

    just jumping in to say welcome to the site that none of us really want to join. However there are many of us here who have travelled the path you find your self on. I'm a nurse also, but all that knowledge and sense goes out the door when it's happening to you. Just try as hard as you can to take one day at a time. It's hard not to get ahead of yourself. Breast care nurses are a great place to go to for information and support. It's great you have your adult kids with you. Try and take someone to your appointments just to write stuff down. It's amazing how much you don't take in at the time. I am 4 years post a second diagnosis and doing really well. Early breast cancer is very treatable. Good luck with your upcoming surgery  

    Hugs

    paula xxx

  • Hi Hooper65, have only just seen your post but wanted to let you know that you are not alone, and I understand only too well the overwhelming thoughts and feelings when first diagnosed. There is so much to get your head around - it can feel like everything is unravelling so fast and in the meantime we are trying to be strong and keep it together for everyone around us. It's great to be positive, but at the same time it's important to acknowledge that this is a difficult thing to go through and we wouldn't be human if we weren't just a bit anxious. The beginning, in many ways, is the hardest part of the whole ordeal, as there is so much we don't know and we have so many questions and not everyone knows how to cope with a loved one's diagnosis.

    I found a few things useful at this point - reading the My Journey Kit from BCNA gave me reliable information (keep away from Dr Google!) and talking to my breast care nurse helped me to understand that early breast cancer is very treatable and survival rates are very good. Being informed helped me to feel a little more in control :-) It's great that you've come on to this website, there are so many of us that have travelled this road and we are happy to offer advice and support along the way. I'm now 2 years post active treatment (mastectomy, chemo, radiotherapy and Herceptin), now on hormone tablets, and had my reconstruction last year. It has been a long, hard road but there have been many unexpected joys along the way; including receiving support from unexpected quarters, meeting some amazingly skilled and caring medical professionals and making some new friends here who just "get it".  

    I wish you all the very best for your surgery next week - remember, one step at a time, you will get through this. Best wishes, Jane xx

  • Thanks Jess

    I didn't think I was doing things right.  It's great being able to read the experiences  that other women are dealing with. Thanks for responding,  felt like I was lost in space.  Feeling a lot of that lately.   

  • Hi hooper65, I just wanted to get in touch to welcome you to the network, it can be a pretty scary at first, but there are many wonderful women on here to lend their experiences and support. 

    I noticed that your blog post has not appeared in the network main page, so Im just working to get that up for you.

    If you need any help in the online network, or to access any additional support services, please just let me know 

    Jess