Forum Discussion
hooper65
11 years agoMember
Totally Overwhelming
First post tried once before don't think I was successful, techno illiterate. First mammogram ever was called back, don't worry they said a lot of ladies get called back it's usually nothing. Had a core biopsy they said it looked like DCIS don't worry they said most come back benign. Went to my GP on the 19.5.15, not good news, it's DCIS it's malignant, high grade, 4.3cm, more than likely need a mastectomy considering the size, high grade and small breasts. I'm numb, pinch me I said I felt my doctor touch my hand I knew I wasn't dreaming. My head was spinning it still is. Seen the surgeon a week later, we have decided on a lumpectomy with follow up radiation. Hopefully the excision will come back with margins clear. Surgery booked for 23.6.15 trying to stay positive, not easy. Have 3 adult children, 2 of them supportive, one amazing daughter in law, 3 gorgeous grand babies, a supportive partner and terrific friends. My Mum passed away 2009, Dad is hiding his head in the sand. Why do I feel so alone. I am terrified, the stat's don't seem to be in my favour, question my decision daily, I trust my surgeon knows best. I am a nurse and see a lot worse but this does not allay my fears, my doubts much. I have read some of the blogs and think wow I'm not alone, I hope I can draw some positives along my journey.
16 Replies
- hooper65Member
Hi Lyn
Thanks, I did ask a number of times prior to my surgery about the sentinel Node however reassured that it was not necessary. My core biopsies showed DCIS and I guess my surgeon thought he was doing what he knows?? Anyway I'm not overly positive that all will Be clear and expecting an axillary clearance next. Hope all goes well with you Lyn.
Sonya xx
- lrb_03Member
Hi Sonya
Sorry the news wasn't good today. I was a bit surprised, though, that you didn't have a sentinel node biopsy with the first surgery?
I do get to skip that step, as I know that I'm node positive, so will be going straight to an axillary clearance come surgery time.
Thinking of you
Lyn
- hooper65Member
Thanks Paula
Unfortunately not good news today. Have DCIS and they also found invasive cancer. Need to have mastectomy surgery booked for the 21st July with sentinel node biopsy. Half expected it, but still devastated at the news. One day at a time, one appointment /surgery at a time. Hope all is well with you ??
- mum2jjMember
Glad to read your surgery went well. thinking of you as you get your results tomorrow.
Paula x
- hooper65Member
Hi Tracey
Thank you for your wise words. I think that's the hardest for me, I have always been a planner, so having no plan is difficult. However I am trying to do this in little steps, day by day, appointment by appointment like you say, it's a lot easier and tell myself this daily.
I have found BCNA a tremendous support, it's encouraging to hear others experiences and their wonderful support. It's like a new little family that actually do understand.
Your hug was felt, thank you.
Sonya x
- hooper65Member
Hi Lyn
Had my surgery last week, was very pleased with my surgery and surgeon, he did a tremendous job. Not like I'd imagined. Get my results tomorrow, very anxious not totally positive about results, more realistic I guess, will be a bonus to receive good news, ready for the disappointment. You're spot on about being on the other side, felt very vulnerable and out of control. I'm trying my best to be a good patient, it's not easy.
All the best with your journey, hope the chemo isn't too harsh, stay strong, cry when you feel like it, have the empathy for yourself that we always afford others.
Take care, and let others take care of you too.
Kind regards
Sonya x
- hooper65Member
Hi Upi
Thank you. I had my surgery last week, going for my results tomorrow. It certainly has been a tense couple of months, waiting is the worse. Good luck with your own treatment, hope all goes well.
Sonya x
- AnonymousNot applicable
Hi Hooper, I hope that you get the support that you need from this network. It is overwhelming to get a diagnosis, it's like being in a fog for a little while until you get your head around it, and that's quite normal. Take your time, and deal with 1 appointment at a time, and it might reduce the big hurdle into 1 little one. Stay in touch with the online network k, as they will give you lots of inspiration along the way. Sending you a cyber cuddle, Tracey B xxxx ??
- lrb_03Member
Hi
Just reading through your post & noticed that you were due for surgery last week. Did it go ahead? How did it go? As yet another nurse ( are we over represented here?), it's so different on the other side, isn't it?
I, too, am just starting my journey. Following a different path. Started chemo last week, surgery to follow, then probably radiotherapy
thinking of you, take care
Lyn
- UpiMember
Hang in there . I was diagnosed early May and have had two surgeries. My margins are now clear and working on treatment options. First few weeks are so difficult but it does get better and u will start feeling more in control. Good luck with the surgery.