Forum Discussion
maryroset1
9 years agoMember
Know hoe you feel as this has crossed my mind too.
My mum and most of her side has had it, me too and hoping my 10 year old isnt as unlucky.
I have had to deal with the tough questions from her which have broken my heart. All smiles in front of her but i get quite teary when i think about what the future may hold for her.
I dont have the common genes but obviously something going on. I am taking part in peter mac research program to closely look at this in the hope they can find and test for new genetic mutations. Its the least i can do which may help things for her.
Maryrose