The Foxs Lady

I thought the article was a little dramatic - but often news media is about triple neg. I go on what my very good oncologist says.... ( and he is very dry and very down the line). I am stage 3 grade 3, have had one mastectomy, chemo and about to start radiation. In Jan I am having my ovaries and the other breast out and off.......and my doctor says my prognosis is very very good. He says they have really worked out the chemo combinations and they are really successful. I'm going with that and I feel very confident.

Just re-read the article and I had the 5 year survival rate wrong. Does anyone know what the prognosis is? Linda

Hi Janey I just googled the newspaper article - sounds interesting. Lets hope the breakthrough is marketable soon. I didn't realise the survival rate for TNBC was only 5 years? Did anyone else know that? Linda

Hi Sandi,

Would love to catch up, I live in Craigmore - opposite ends of Adelaide, but I work in the city too. All the best with your chemo. Let me know how it is going, and take every day as a new one!

 

Love Catherine

Girlies - just wanted you all to know in today's Guardian there is a small article about very new and very successful drug breakthrough in the treatment of triple negative cancer. Very heartening as it says it is the combination of 2 drugs they are already using.......but doesn't mention what those drugs are.

I have an appointment with the surgeon next week and will ask her for a referral. Thanks again. Jo

Hi Catherine

I'm about to start chemo tomorrow at Flinders but would love to catch up at some stage in future. I live McLaren Vale and work in the city. What about you? I'm sure something can be arranged. Keep in touch and lets try work something out.

 

Love Sandi

 

 

Hi Jo,

 

My GP sent me to a physician as I had unusual changes in my blood tests and was also also short breath, had fluid on my ankles and hands and had chest pains. I has lots of tests ECG, Cardiac Ecco and MRI of my heart.

Hope this helps I think you should get it checked out. Good luck. Catherine

Hi Catherine, similar stories, unfortunately. I too have developed osteoporosis but instead of medication my GP gave me an infusion that will last for twelve months. I had a reaction to it like chemo, and when I researched it, it is a chemo drug. I had three fractures in my legs in three months. an ankle, then both knees. I have terrible shortness of breath, exhaustion. My mum had heart disease and I'm beginning to wonder if I have some damage there. How did they test for your heart problems? I keep waiting for things to improve, I hope they do for you to,. just some semblance of a normal life would be appreciated. I have yet to go down the reconstruction side, too busy fighting all the other things that happened after treatment finished. Jo

Hi I also live in Adelaide and would love to meet some TNBC ladies!

 

My story is in short, I was diagnosed with TNBC in Feb 2011, underwent mastectomy then 6 cycles of chemo. I then discovered I am BRCA 1 positive so underwent hysterectomy and removal of ovaries, then has other breast removed with expander reconstruction.

 

Since then I have developed decreased bone density withospeoporosis which I have to take medication for. The chemo also damaged my heart so have ongoing issues there.

 

I am now having surgery this month for the aneuysm in my brain. Luck me.

 

Some days I feel like I can not win.

 

Love to meet some other TNBC ladies in Adelaide

Love Catherine