The Foxs Lady

Hi Leanne

Would love to catch up if able when you are in Adelaide in Nov. My treatment is being done at Flinders as I 'm about 1.5 hrs south of adelaide but as I work in the city Flinders is on my way home! I get surprised by each of our different treatments as I had a partial mascetomy not even suggested full mascetomy. I will be having 6 cycles of FEC followed by 6 wks of radiotherapy and hope to work when I can - although oncologist wants me to take 2 weeks off following 1st cycle. I will do what I can, when I can :)  I am being  referred for genetic counselling so if I go for testing more surgery may be required. For now am focussing on start of chemo on14/10 - am putting together a care pack for me based on tips from all the lovely ladies on this site. I'm going to the LGFB workshop this Tuesday where I hope to pick up so more tips. 

Keep in touch as would really like to meet someone from Adelaide for catchup. All the best - Sandi (smead) xoxo

My oncologist said go home and do what you want to do.  Don't overdo it.  Don't put anything off though that you want to do.  Recover. 

I did everything that they said.  I said to my GP all I want is to be told that it is gone and it has gone away.

He reached across and said, you know it won't go away.

I was grade 3 stage 3 on diagnosis.

My oncologist said if it comes back (and I liked the IF part), then we are talking of prolonging life.  The surgeon said that we can prolong life for up to 14 years so far.....but you could make it a record and go longer.

Who knows?  God alone knows.

It caught me by surprise the first time.

I won't be caught next time.  IF it comes back I will be so ready for it if....but once again I work on IF.

In the interim, I am recovering....slow process.

I will be doing all I can to get my body back into the best condition. 

Until I got on this site, I had met 3 women who were long term NED with TNBC.  That part was daunting, but no on this website, I am seeing more of them. 

My oncologist said go home and do what you want to do.  Don't overdo it.  Don't put anything off though that you want to do.  Recover. 

I did everything that they said.  I said to my GP all I want is to be told that it is gone and it has gone away.

He reached across and said, you know it won't go away.

I was grade 3 stage 3 on diagnosis.

My oncologist said if it comes back (and I liked the IF part), then we are talking of prolonging life.  The surgeon said that we can prolong life for up to 14 years so far.....but you could make it a record and go longer.

Who knows?  God alone knows.

It caught me by surprise the first time.

I won't be caught next time.  IF it comes back I will be so ready for it if....but once again I work on IF.

In the interim, I am recovering....slow process.

I will be doing all I can to get my body back into the best condition. 

Until I got on this site, I had met 3 women who were long term NED with TNBC.  That part was daunting, but no on this website, I am seeing more of them. 

Hi to everyone -  I am amazed at some posts. Do we really have an increased risk of another cancer ?  I was diagnosed 19th Nov 2012  and knew I was BRCA 1 .Stage 1 Grade 3 Bi lateral massectomy and re construction with tissue expanders  on 28th Nov which hopefully get replaced with implants soon. My cancer was 18mm with no nodes and clear margins.  I finished my chemo in May which was no picnic as I'm sure those of you who have been there know but to the new folk who are about to start it is doable. Just be kind to yourselves. No radiation due to double breast removal and hair has grown back really curly.                                                    If you read this smead I live 6 hours from Adelaide,so maybe when I have my implants at RAH , we can meet ?                                                                     Hang  in there all and huge hugs all round.   Leanne  Xxx

Hi to everyone -  I am amazed at some posts. Do we really have an increased risk of another cancer ?  I was diagnosed 19th Nov 2012  and knew I was BRCA 1 .Stage 1 Grade 3 Bi lateral massectomy and re construction with tissue expanders  on 28th Nov which hopefully get replaced with implants soon. My cancer was 18mm with no nodes and clear margins.  I finished my chemo in May which was no picnic as I'm sure those of you who have been there know but to the new folk who are about to start it is doable. Just be kind to yourselves. No radiation due to double breast removal and hair has grown back really curly.                                                    If you read this smead I live 6 hours from Adelaide,so maybe when I have my implants at RAH , we can meet ?                                                                     Hang  in there all and huge hugs all round.   Leanne  Xxx

You asked if there was anyone living near Albury/Wodonga area well I do. I live not far from you in Chiltern. Like you I'm a stage 2, Grade 3, No nodes TNBC. I was digonsed in July this year. Just started Chemo this week. 1 down 3 more to go. Atm I'm waiting on the gene test to decied what is next for me.  

Take care

Hi Jane, I would love to meet up too, if only you were still in the Byron area!  I'm in Lismore.  However, I get down to Sydney sometimes so maybe we could meet up next time I'm down there?

Great tips here, thanks for sharing.  Sounds like you took really good care of yourself, good on you! :)

seriously an oncology nurse told you that you were lucky......she needs to change jobs.......

don't they realize that we hang on every word that they say.....it is better to say nothing than to use the word "lucky" with any part of a cancer diagnosis

I live in Heaven....and until I got diagnosed with cancer...I worked in Paradise....

What a beautiful part of the world.  I have lived here most of my life.

When I was diagnosed, my doctor suggested I go to the Wesley at Brisbane and get my treatment there.........and so the journey began.

1200 kms from home.

Lots of travel....and for the most part on my own.....