I'm feeling very isolated as a TNBC in my area.
To my knowledge there is one other (a recent diagnosis who is now going head long into intensive treatment).
I have physically met three survivors.
I know that there are more out there but I find women with hormonal breast cancer have no concept of TNBC.
Looking forward to connecting with others...........
I was diagnosed grade 3 stage 3.
I am so sorry you are feeling isolated. Have been reading your blogs and see you are 1200 km from Brisbane, so I'm guessing north-west or north. I am in SE Qld, so not much help geographically but we can chat online.
I am TNBC too, diagnosed last April with Grade 2 Stage 3, and like you, found my lump in the shower, between mammograms and US's. I had bilateral surgery, chemo & rads, and then a hysterectomy - hopefully to cut the percentages of recurrence. At present I am in remission and feeling normal apart from numb-ish toes and reduced energy levels.
Apparently the best thing we can do for ourselves is diet and exercise - lots of vegetables and at least 30 mins a day workout, walking or gym. I also do yoga because it is so relaxing, in a class set up by Anahata Healing.
There is an enormous amount of research going into TNBC and they are getting some really good lab results. Hopefully there will soon be trials. All we can do is be as strong as we can to fight this in the meantime.
We are all here for each other. The pink sisterhood is just wonderful. Keep posting so we know how you are going. Big hug,
Michelle xx
Hi, my name is Jacky and I was diagnosed with TNBC (Stage 2, Grade 3) 1st May this year. I'm half way through chemo after a lumpectomy, with radiation to follow. Wouldn't it be great if all TNBC patients were concentrated in one area?! Anyone around Albury-Wodonga?
I feel pretty lucky that all treatment is available locally, cannot imagine how much harder it would be if you have to add a lot of travelling or being away from home like some of you describe.
6 years ago my husband and I moved to Australia, from the Netherlands, and since we never got kids it's just him and me, no extended family. He's great, and we have friends around that are there for us too... although it's not the same as family.
Dear Foxs Lady; we might not live close, but we are here! Only a couple of clicks away!
Hi, my name is Jacky and I was diagnosed with TNBC (Stage 2, Grade 3) 1st May this year. I'm half way through chemo after a lumpectomy, with radiation to follow. Wouldn't it be great if all TNBC patients were concentrated in one area?! Anyone around Albury-Wodonga?
I feel pretty lucky that all treatment is available locally, cannot imagine how much harder it would be if you have to add a lot of travelling or being away from home like some of you describe.
6 years ago my husband and I moved to Australia, from the Netherlands, and since we never got kids it's just him and me, no extended family. He's great, and we have friends around that are there for us too... although it's not the same as family.
Dear Foxs Lady; we might not live close, but we are here! Only a couple of clicks away!
