The Foxs Lady
I'm feeling very isolated as a TNBC in my area.
To my knowledge there is one other (a recent diagnosis who is now going head long into intensive treatment).
I have physically met three survivors...
Forum Discussion
Interesting to read what you wrote Deb.
I went to Brisbane for my first round of chemo. I travelled down and back on my own. When I got home, I went to "the cave" which was my bedroom area. I "cooked" and kept cooking. I took panadol for temperatures and kept monitoring to make sure I didn't get to the dreaded 32 degrees.
One night I went to the shower to wash my hair (still had it) to cool myself down and my temperature dropped down.........and then not long after rocketed through the roof.
I took some panadol and then noticed I had reached 32 so I drove myself up to the hospital.
The nurse monitored me and sent me home when my temperature went down (probably due to the panadol).
It appears that I was neutropenic for quite a long time but had no idea because I had nothing to compare it to.
I was too sick to drive myself to the doctors to sit in a waiting room of sick people to get some assistance.
When I went back to Brisbane they reviewed everything before the next treatment and THEN everyone sat me down and said, IF this happens, or IF this happens.....
Because I was on my own with no one monitoring things, I was in a very dangerous place.
Chemo made me so tired that I had to remind myself to breathe.