I'm feeling very isolated as a TNBC in my area. To my knowledge there is one other (a recent diagnosis who is now going head long into intensive treatment). I have physically met three survivors. I know that there are more out there but I find women with hormonal breast cancer have no concept of TNBC. Looking forward to connecting with others........... I was diagnosed grade 3 stage 3.

Hi my name is Jane and I have the same diagnosis as you stage 3 and grade 3. I have had a mastectomy am just about to finish chemo and start radiation. I am living in Sydney at the moment But am usually from Byron Bay...though I have been in Vietnam for 5 years. I know how scary it is.....and have had people say when I say breast cancer - "oh well your going to be fine then aren't you?" Would love a chat sometime. Jane

Unfortunately isolation can be a reality for many! Where are you from? I'm from Tamworth and understand completely the way you are feeling. I also was diagnosed Stage 3 12 months ago, so have finished all treatment options. Hang in there it will get easier. Happy to answer any questions you may have. Lou

I have lived 1000kms from treatment so no the isolation well and yes triple negative for the last 3 years I have been fighting and now unfortunately secondary diagnosis at age 38. I too come across more hormonal ladies then not! But I guess trip neg is the minority

Hi, my name is Jacky and I was diagnosed with TNBC (Stage 2, Grade 3) 1st May this year. I'm half way through chemo after a lumpectomy, with radiation to follow. Wouldn't it be great if all TNBC patients were concentrated in one area?! Anyone around Albury-Wodonga? I feel pretty lucky that all treatment is available locally, cannot imagine how much harder it would be if you have to add a lot of travelling or being away from home like some of you describe.6 years ago my husband and I moved to Australia, from the Netherlands, and since we never got kids it's just him and me, no extended family. He's great, and we have friends around that are there for us too... although it's not the same as family.Dear Foxs Lady; we might not live close, but we are here! Only a couple of clicks away!

The Foxs Lady | BCNA Online Network

66 Replies

smead
Member
12 years ago
Hiya

Hope all went well yesterday and you are recovering. Thinking of you. BFN - Smead xxx
smead
Member
12 years ago
Hiya

Hope all went well yesterday and you are recovering. Thinking of you. BFN - Smead xxx
Stressmagnet
Member
12 years ago
Don't forget to enjoy your life. Not much point otherwise!
JaneyH
Member
12 years ago
I thought the article was a little dramatic - but often news media is about triple neg. I go on what my very good oncologist says.... ( and he is very dry and very down the line). I am stage 3 grade 3, have had one mastectomy, chemo and about to start radiation. In Jan I am having my ovaries and the other breast out and off.......and my doctor says my prognosis is very very good. He says they have really worked out the chemo combinations and they are really successful. I'm going with that and I feel very confident.
Linda_K
Member
12 years ago
Just re-read the article and I had the 5 year survival rate wrong. Does anyone know what the prognosis is? Linda
Linda_K
Member
12 years ago
Hi Janey I just googled the newspaper article - sounds interesting. Lets hope the breakthrough is marketable soon. I didn't realise the survival rate for TNBC was only 5 years? Did anyone else know that? Linda
CatherineP
Member
12 years ago
Hi Sandi,

Would love to catch up, I live in Craigmore - opposite ends of Adelaide, but I work in the city too. All the best with your chemo. Let me know how it is going, and take every day as a new one!

Love Catherine
JaneyH
Member
12 years ago
Girlies - just wanted you all to know in today's Guardian there is a small article about very new and very successful drug breakthrough in the treatment of triple negative cancer. Very heartening as it says it is the combination of 2 drugs they are already using.......but doesn't mention what those drugs are.
Joanne1957
Member
12 years ago
I have an appointment with the surgeon next week and will ask her for a referral. Thanks again. Jo
smead
Member
12 years ago
Hi Catherine

I'm about to start chemo tomorrow at Flinders but would love to catch up at some stage in future. I live McLaren Vale and work in the city. What about you? I'm sure something can be arranged. Keep in touch and lets try work something out.

Love Sandi