Summit- Need to share

Hey my beautiful pink sisters

I just needed to let everyone know that I did go to the Summit BUT I became very unwell. I got through the Thursday, just, and went back to my room and slept the night away.

Friday I managed to get up get dressed and I even forced myself to walk to the Summit which was a 20minute walk thinking the fresh Sydney air would do me good. BUT by the time the first speaker had finished speaking I couldn't hang in there anymore.  I found my way to the bathroom and somehow had managed to alert some people that I was unwell.  

The next thing I knew I was then taken by beautiful BCNA staff back to my room where I slept and woke feeling slightly better. I was still so sick I had to call the Perth Hospital to get results of my skin punches I had had done on the Tuesday afternoon before flying out on the Wednesday to Sydney as I had major concerns that my illness could be something sinister.  I was told my skin punches showed no inflammatory breast cancer BUT they wanted me to have an urgent MRI and see surgeon.  I feel there has to be something wrong for them to put so much pressure on me and with being so unwell I decided not to extend my stay and came home yesterday instead of the 16th as originally planned.

I am absolutely devastated. I have been so looking forward to the Summit for so long.  I wanted to learn so much, I wanted to connect with all the beautiful people that were apart of the summit, I wanted to get to party and let my hair down with all the beautiful people I know and would get to know and who understood why it was so important to party with my pink sisters.  I wanted to get to know all the BCNA staff, I wanted to do my speech on CONNECT which is something I am very passionate about.  I wanted to sit and listen and learn from all the experts. I also had planned to spend a week with my beautiful BCNA Beastie.  I got to do very little and I am devastated

I cannot speak highly enough of BCNA organisation and the very special people who work for BCNA.  I was so touched by all the love, support, attention and concern that was shown to me. There is one very very special person who has been my lil guardian angel and that is Kim Hyman.  I can't ever show her how much gratitude I have for the wonderful care and attention you gave to me Kim, thank you precious girl.  You and all the other staff are incredible people.  

In my whole BC journey I have never ever received so much love and support but the compassion shown to me over those few days was something that will stay with me for the rest of my life.  All of the BCNA staff were there for me, Raylene Boyle showed me so much compassion, the ladies even in the toilets to start with, my absolute beautiful and precious pink sisters and especially the girls from the community liaison course I did back in April sent me lovely concerned messages, plus any other precious pink sisters who learnt of my drama.

I can tell you now that I never ever want to be this ill again as I so feel like I am back at the end of my chemo BUT I can think of no better place to have been sick than with all the beautiful BCNA staff and pink sisters and then to have my BCNA beastie come and stay with me on Friday night to look after me and to at least get to spend one night together. 

I so hope I get to go to another Summit but under very different circumstances in the not too distant future.  

I can say on a very positive note that the speakers I got to see were amazing and one thing I did manage to learn is that there is so much research and so much pressure being put on the Government through BCNA and anyone associated with them to do whatever can be done to introduce better treatments with less side effects and just better treatment all round.  We need to continue to keep on supporting BCNA, raising funds for research and keep on getting the word out there about breast cancer.

Out of all of this to date I can say that I do not have cancer but need to find out what horrible thing is going on in my body to be causing such unwellness.  I will keep you updated on any news.

Luv all you  beautiful pink people with all my heart.  Mich xoxo