EllenW
3 years agoMember
Stopping treatment
I (and only I) have made the decision to stop my chemo treatment. After suffering for weeks now since my last round with hospitalisations, infections. pain, oral thrush to the extent that I haven't ea...
Hi Ellen, I know this is 4 years on but reading your post and the replies has really helped me with my decision to stop chemo. I'm nearly 9 months post op and cancer free but still have 5 chemo treatments to go. It's making my peripheral neuropathy (nerve pain in feet) a lot worse and I now have it in my hands. I've had it in my feet for 15 years and they told me it would get worse with the chemo but I was hoping it would stay at my feet. Some days I can barely hold a pen. Not something I want to get any worse. There's other issues as well. Memory, headaches, mouth ulcers and thrush, fatigue and I'm now on Insulin twice a day as my Diabetes has gotten out of control.
I'm in Darwin and I asked for a break before I came so I haven't had chemo for 7 weeks now. I feel quite good. I'm even getting up and doing things like the dishes, washing, ironing and vacuum cleaning. All of which I haven't done in months. My partner is quite happy. He's been doing everything since I was diagnosed. Lucky me...
I don't want to go back to being a sick person.
Hope you're still cancer free.
Kind Regards, Kirsten xx
Hi Kirt Thank you for sharing so openly. It takes a lot of courage to listen to your body and make a decision for change like this. It sounds like stopping chemo has helped you reclaim a sense of yourself again, and that matters.
Have you had a chance to chat with your treating team again about stopping all together? They may want to make sure any changes to your treatment plan happen in the safest way and at the right time for you.
I truly hope your path continues to bring you strength, stability, and good health. Wishing you all the very best as you move forward ❤️