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My name is Wendy, and I was diaognosed with breast cancer 16yrs ago. Life has been good to me since that time. I have been lucky to see my 3 granchildren born and spend precious time with them. Early last year I had an x-ray for a painful back . This was followed by many scans etc. and I was diaognosed with secondary breast cancer in the spine, pelvis, ribs. I guess I was lucky no organs were affected.
I have had chemo & radition treatment and my cancer had stayed stable for 9 months and now has decided to be on the move again. I am commencing chemo in tablet form this week.
I would love to talk with someone who is going through similar circumstances as I dont know any one else who has secondary breast in there bones.
12 Replies
Hi Beery,
Hope Xeloda is going well for you. I am only on Exemestane now & have been on it since Dec. Having good results. Tumor markers have come way down & bone scan stable. I do get breathless on exertion more so lately & will mention next onc. appointment. Wendy h 67
Hi Wendy, I've just completed my second cycle on Xeloda. So far have experienced extreme breathlessness on exertion (like taking my usual walk) also, a little hot/burning feet and a cough. See onc again next Tuesday for followup, have Xgeva injection and port-a-cath flush. I was so glad to hear that your treatment with Xeloda lasted 15 months and there is a possibility of future treatment again. It gives me a whole new outlook with this drug, I hope I have the same result. My mets are that same as yours, but I also have mets on the neck of femur (hip/leg connection). Was previously on Exemestane but experienced side effects. Tried a few other hormone treatments and afinitor, before being put on IV chemo (EC) as bone cancer had shown further progression. Look forward to exchanging info on our treatment regime. Sue:)
Hi Beery, I have just had my third anniversary of living with secondary breast cancer. My cancer is in the bones- Spine,neck,skull,ribs, pelvis & tail bone. I started my treatment with radiation treatment as the cancer was pressing on my spinal cord. After I had Iv Abraxane, followed by Xeloda. which I was on for 15 months. It really wasn't too bad except for feet & hands problems. Towards the end of each cycle I had burning pain & cracked skin on feet & hands. Moo Goo cream I found was the best thing but tried other creams as well. One good thing it kept my cancer stable. Had to watch my diet as diarrohea can be a problem. My tumour markers didn't change much so I'm now on Exemestane only. Due for scans this month & a visit to my onc. who I haven't seen since Jan. I may have to go back on Xeloda at some stage. Recently I have been getting dizzy turns which I hope is only positional vertigo as told by my GP.I guess when I have the scans all will be reveilled.
Best wishes Wendy
- Hi Wendy. Thank you for accepting me. I too have secondaries to bone with non further progression to soft tissue, yet!. Cancer found in L3 of spine but progressed further along spine, ribs, neck,brain, hips and fermur neck bones. Had hormone treatment, evermolus, (afinitor), radiation to pelvic area where initial secondaries found. Now been put on Xeloda....well I was on it for a couple of days until I developed a chest infection. Now recovering from it, taken off Xeloda for time being. Still have to have heart echo before appointment with my onc. My thyroid apparently has decided to play up as well..Bloods appear OK according to onc but I still have to have thyroid scan yet. I'm a little sceptical now, and sick and tired of being sick and tired all the time. I have officially retired now, can't see myself going back to work full time now, which has upset my plans. In would love to hear your story especially your recent one while on Xeloda. I realise we all react differently to meds. I assume In will be put back on Xeloda once everything has settled. Looking forward to hearing from you.Sue:-)
Sorry to hear that, Wendy. But at least there are many other options. I hope you soon work out a new treatment plan, without the nasty side-effects.
Best wishes.... Pam
Hi all
Have been on Xeloda now for 6 months and it looks like I will be changeing treatment because of side effects. My oncologist said there is plenty of treatment available but it will probably be I.V.
Not looking forward to that , but I if it keeps us alive I should'nt complain.
Just waiting to see what happens after the next bone scan in april.
I'm still enjoying life, lots of special times with my little grandchildren.
Wendy
Thank you for your reply,
I was diagnosed with secondaries in March 2011. The mets are in my spine neck ribs skull & hip bone. When I do a Job I do it well. The cancer stayed stable for 9 months during which time we had a lovely holiday in Cairns during the winter. On return from hols. I had a blood test & my tumour markers had risen again.After scans it showed a couple of more small tumours. I am now on Xeloda which has caused some feet problems but I am coping with it., especially when my oncologist tells me my tumour markers are starting to come down. I feel I am coping ok with the love and support of family & friends My little grand children make my day.
Hope you are ok Enjoy Christmas
Wendy
Hi Wendy
I was diagnosed with secondaries right from the start (Dec 2010). I was 40 years old. The mets are in many of my bones and last year it progressed to my liver. My oncologist is looking to change my treatment (again!) as my tumour makers were up and will confirm this once we have my next lot of scans next week. He did mention Xeloda as a chemo option for me.
Hope you cope OK with it all. You are definitely not alone!
Amy
recently visited my oncologist, and her news was that I may have to stay on Xeloda chemo tabs. indefinately. Guess it is better than some of the other chemo treatments that I have had in the past. Can go off the treatment for a short break if I want to go on holidays. Is there anyone out there on the same treatment?
recently visited my oncologist, and her news was that I may have to stay on Xeloda chemo tabs. indefinately. Guess it is better than some of the other chemo treatments that I have had in the past. Can go off the treatment for a short break if I want to go on holidays. Is there anyone out there on the same treatment?
