Hi I dont quiet know where to start, A routine mamogram found a lump in my right breast on the 3rd Jan 2012, I was informed that day that I would need to see breat surgeon. I had biopsy on 19th Jan and got results on the 31st Jan. I had surgery on 17th Feb were they removed lump and 2 sentinle nodes. I get my results on the 6th March. I had a bad day yesturday and didnt know who to talk too till my partner came home and said to join bcna. I am 49, mother of 4 children, grandmother of 5 and in new relationship of 2 1/2 years. I think my partner is doing ok he is a bit quiet. I just feel at the moment that my whole world is falling apart and not sure what is the next step, I try not to think about the cancer and try to keep positive but it is a little hard when you could lose everything. Thanks for listening Selina

Hi Selina, rest assured, there are many, many of us here to support you thru this twist in ur path. We have been where u are right now and felt very much the same emotions. It can be all consuming of ur life right now and feel a bit 'out of control'. Don't be frightened to come here and vent or ask for advice..thats what we are here for. Just checking too--has a "my journey kit" been ordered for you?? You can order 1 thru the BCNA site if ur Breast care nurse hasn't already sone so...it is such a valuable resource, full of info written in real language and plenty of stuff for not only you, but also family & friends.Even tho it can be difficult to stay positive, a good outcome is more the norm these days and if you can feel u trust ur medical team and that they are doing their best for you then there should be nothing to worry about (I KNOW thats easy to say)..I am not in the bayside area, but u are connected so take advantage of the support group..I am always happy to become a contact either on this site or u can search for my name on Facebook-(if ur on it)there is a great BC group there for support too. I have the same prof pic on both so i am pretty easy to find :) I hope this sees u feeling a little easier about things Good luck with ur results..hopefully just the lump and 2 nodes is all that is required to be removed Sam :)

Your in the right place to make contact with some really great women and gain some really valuable advice and information like from Samantha in the blog above who like so many others is a tower of strength and wisdom to so many people on this site despite going through her own ongoing battles and heart aches, she is a real inspiration to so many. Like you i felt my world was falling apart too and i felt so scared of the unknown. I could not find enough information to satisfy my grief and found that the internet became my closest companion during this horrible time. Selena you are going through something that we never think we will get ..... It is scary and most people on BCNA understands exactly what you are feeling. You will have your ups and downs which is so normal, i still have them now and i am 6 months post Op......Have you got your Journey kit yet as it has some great information in it and it is a really neat kit. I wont say " be brave and dont worry" as it is really hard as the dam thing has invaded your body and you have every right to be scared. But i will say try and keep reminding your self to stay positive as the medical world has come along way over the years and most people survive this disease through the treatment plans developed by your oncologist... I felt myself crying at every corner and that is normal too, so dont be afraid to cry and talk about it as much as you want to, as it is a big emotional journey you are embarking on. I still need to come onto this site and both try and reassure others and also to gain advise for my self so anytime you need to chat or cry dont be afraid to come on, someone will always be around to help you. The waiting will really become a nightmare, it drags on and on and on but try and keep busy until 6th March. I also are the same age but i have 3 children and 4 grand kids that are just my life's greatest gifts and no dam cancer will ever take that away. Cheers Jo xx

Hi Jo, Sam and Di, Thank you for being here, My partner ordered "my Journey" for me when we first got the results he also started reading the early breast cancer book given to us by my surgeon. Dominic took me out for a while today just so I wasnt stuck at home, you see we were booked to fly to Brisbane tonight for 2 week holiday to see my children and new grandson, also to have our engagement party with family and friends and a christening to attend. All my children except my youngest (17) live in Brisbane, I guess I am missing them more at the moment cause I am unable to go see them. But I have to be positive that before the end of the year I will get up there. I have all faith in the Medical proffesssionals as I am a sterilizing technican..... I sterlize the equipment and instruments used for operations. Yes I think the hardest part now is the waiting for the results to see where I go from here. I think it is more the finanical side of things that worry me the most but hey it's only a house and if worse comes to worse I sell it and start again........No silly me couldnt afford at the time income insurance. I will be glad tho once the swelling goes down and I can rest my arm easy...it is so uncomfortable, on the plus side they didnt nick the nerve so I still have full movement. Thats enough from me today as I cant sit at pc too long.....Yes I am on facebook if any one would like to also chat there. Thanks Selina

Selina, are you going as a private patient because you can go as a public and pay nothing for the treatment and it is no different because you are public. If you have to travel for treatment i am sure that you can get reduced accommodation etc Contact your local council as i also know they give a hand with cancer patients. You still maybe able to work so dont give up on that yet. Many people work and just have a couple of days off each time they have their chemo done. Ask about it on this site as many people may be in the same boat and beable to give you some idea's Cheers Jo xx

New to all this and need friends | BCNA Online Network

18 Replies

sel1962
Member
13 years ago
Hi to all, sorry I havent been in touch, but I am doing ok, I am back at work, and dont have much free time.

I have been offered my old job back in Brisbane which will be easier on my body plus I will be closer to my children and grand children.

We are currently trying to sell the house so we can be gone by xmas.

If there is anyone in Brisbane whom would like to get in touch or if anyone here would like to catch up on face book feel free to send me a request.

Since my last visit here I have completed my radiation therapy, had second lot of vein surgery, back at work fulltime, trying to stay focused and not have too many bad days, but they creep up on me. I try to keep it all together and dont really talk about it too much......is this a good sign or not?.......My breast care nurse said I dealt with what needed to be done at the time but I havent actually dealt with it.....she could be right and once the move is over I will seek councilling and hope that Dom will come with me to help understand what I am feeling, thinking, and why I get so upset and insecure at times.

Sam I hope you keep improving and if you get a chance to come to sunny qld let me know, my door is always open for a visit.

Thank you to all whom have given me advice and who have been here to listen to me ramble.....

Take care everyone and I will try and get online more often.

Love Selina
Joy_K
Member
14 years ago
There are absolutely NO COSTS at Peter Mac at Moorabbin. It is a public hospital and they claim from Medicare on your behalf, completely covered by Medicare payment.

Parking is the same as any hospital in Southern Health, $6.00 for the first hour, going to $9.00 for second hour, maximum $16? per day. If your appointment goes longer than an hour you get another ticket from Peter Mac reception and feed this into Payment Machine after the first ticket and it reduces back to $6.00.

If you ring Frankston Private ask them the difference in cost between Medicare payment and the cost to you for each session - builds up alarmingly over a long course of radiotherapy.

With love

Joy K

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