Long time between drinks!
Hi All! It's been a while....Lots of changes....both mentally and physically....a long time between drinks, so to speak. I have spent this morning going through my old posts here and all I can...
Forum Discussion
@ScorpionQueen I'm so pleased you are doing OK. And even more pleased that you managed to turn this shit show into something remotely positive by involving yourself in some advocacy.
I was lucky enough, following my first diagnosis, to blunder into the advocacy arena. The knowledge I gained through that experience changed my life. I learned about research and legislation and funding and the art of public health messaging. How to make a valid and well directed complaint when the system let me down.
I moved from being a passive voice to being an expert in my field--the one person in a herd of medical professionals who truly spoke for the patient. The one who really knew how it felt to be thrown into the BC mincer. Given a choice, I'd be blissfully ignorant of the whole process. But I'm not. And that can matter if you find the right space.
It can be difficult to find that right space, but it is so worth it. I gained a sense of perspective that would never have been possible if I had kept my experience to myself, or just bored the hell out of those close to me. Mxx
I was lucky enough, following my first diagnosis, to blunder into the advocacy arena. The knowledge I gained through that experience changed my life. I learned about research and legislation and funding and the art of public health messaging. How to make a valid and well directed complaint when the system let me down.
I moved from being a passive voice to being an expert in my field--the one person in a herd of medical professionals who truly spoke for the patient. The one who really knew how it felt to be thrown into the BC mincer. Given a choice, I'd be blissfully ignorant of the whole process. But I'm not. And that can matter if you find the right space.
It can be difficult to find that right space, but it is so worth it. I gained a sense of perspective that would never have been possible if I had kept my experience to myself, or just bored the hell out of those close to me. Mxx