I haven't posted a blog for a while only because I have been enjoying getting back into my photography and working on enjoying myself. I have had my second round of chemo and due for my third on 20th of Feb. Yay, I will be half way through this tunnel. I found my second round a lot easier to deal with because I knew what to expect in terms of down days. I have always been a very independant person and in first round I really struggled with not being able to do housework, not going to work, not being able to go out, and when my hair started to fall out I fell apart. Now I am happy to say that I feel relatively normal now. I have created some structure and a routine. Accepted that my first week following treatment will be my worst, I just go with it knowing that in my 2nd and 3rd week I will be able to achieve the things I want to do. I am living just for today and I refuse to take my self to scary places. Exercise has definitely helped with fatigue. I walk for 45 mins every day except one day where I was too fatigued and had a lot appointments to attend to. I also swim most days too if it is hot enough. For the new ladies who have joined us recently, this journey is doable. Be kind to yourself, take each day as it comes, challenge any scary thoughts, find pleasure and satisfaction in something that you enjoy doing and above all else stay connect and interest in your family and friends. You will be renewed and uplifted by their love for you. Joy xx

You sound like you have certainly got it all together, and I'm so pleased for you. It's difficult to find a routine, I know. I also like the way you are refusing to go to the scary places. I'm starting to feel a bit more positive as well. I'm sure we will still have our off days but we will get there, take care, big hugs, Hazel xx

You are doing so well!Its so true,that once you actually get started,you do manage things so much better than you ever thought you would.Exercise is so helpful,and throughout the last few months,it has been my saviour.Your outlook on things is wonderful Joy,and I'm sure any new ladies on here will look to your blogs for guidance.We all come to this journey so afraid of the unknown,and before we know it,we are helping others! What a great network:) Take care.xoxoxRobyn

Most days I feel like I have it all together although still fairly fragile. It doesn't take much for me to be reduced to tears but not about BC just emotionally not as strong as I used to be and little things will set me off. We have all been through a huge shock, surgery and now chemo. I am still grieving, I know that, but step by step I am reclaiming some normality. I am not waiting until I have finished treatment to do so but having said that will not be returning to work any time soon. When I do it will be for less hours. Don't want to be working such long hours and under so much stress ever again. How are you going Hazel with the Doxetaxel? You must be due for your next round by now? How is your partner going with his health? Hope you are feeling much better than when we spoke last time. Love Joy xx

Thank you so much. You are one of those ladies that I look to for inspiration Robyn. We do all come to this journey so afraid. Even before tests or diagnosis we are all afraid of a ever hearing the "C" diagnosis. It puts the terror in everyone. However, there are so many of us who have "been there and done that". Women who have been so courages and survived so I have to ask myself "Why not me". "Why not me" to be diagnosed with BC, and "Why not me" go on to survive? You are right about this being a wonderful network and I hope that I can inspire others not to be afraid, trust in their medical team and have as much peace of mind as is possible during their journey. Take care of you to Robyn Joy xx

Well I'm going to repeat what I've said before and say "you've put the 'joy' back in Joy :) Love that you have got things together and you feel you are coping well. Remember though that this is still a roller coaster ride and you may find you hit that wall a good few times now and then so don't get upset with yourself. You're doing the right thing by taking things one day at a time. Lots of love Janey xxx

In a good place | BCNA Online Network

25 Replies

Bearteggie
Member
12 years ago
The waiting for your treatment plan is very stressful but once you have it i place, you will feel a lot better. I hope you get to go to see "The King & I" . It is hard to plan anything when you don't know what appointments you are going to have to keep.

Thank you for your kind words and I am glad that I have encouraged you. Just take one day at a time and look after yourself and before you know you will have finished your treatment. I have only had two treatments and due for my next one next Thursday and I can't believe how quickly the time is going.

Take care for now.

Joy xx
Rosanna
Member
12 years ago
Hi Bearteggie

I am reading the info from BC nurse about my upcoming Chemo/Radio/Hormorne.......I am a bit panicking and worrying about the face all the effects might happened on me. While when I read your script, you are wonderful and so encourageable, feel it, face it.....handle it.

Truely I am very independent too, I hate things sitting there, but I'll fix it in the next minute. I might have to prepare - slow down, calm down, smile myself,

It's a right time just reading from you. Now is the period of "waiting" again, .... Meet the Onco, don't when to start, I want to booking "The King & I" from Showbiz, but hassle, Mmmmmm

Thank you for sharing this with us, I feel you right next to me.

Xoxo
Mich_x
Member
12 years ago
Hey Joy

So wonderful to see such a positive and inspiring post. Well done.

Keep on keeping on and day at a time and hour at a time if and when you may need this.

Remember it is okay to have downers but as long as we bounce back to carry on with our travels.

You are doing great and luvly to hear so many others responding to your post are doing well too.

The road has many ups and downs with potholes along the way but if you can get by with a positive attitude, exercise where you can, eat and drink healthy and just cherish yourself. It is all about you at the moment girls.

Luv always to you and yours, Mich xoxoxoxoox
Mich_x
Member
12 years ago
Hey Gypsy

I am sincerely glad you have found us and feel that you have done a great thing in doing so. We are a pretty good bunch of luvly pink sisters on here with all having one thing in common.

I hope this helps you as you travel along your road.

Lots of luv always, Mich xoxooxox
Bearteggie
Member
12 years ago
I am so glad you are doing well Cis. The first week is definitely the worst from now till your next treatment hopefully you should feel a little better each day. My oncologist told me to carry on as normal as is possible which I thankfully am able to do now. Still have to have rest periods and I don't push myself past my limit. I think I have come to accept what has happened and the treatment that I have to have. It's not fun but it is doable Cis. I have noticed this round that I am not spending anywhere near as much time thinking about BC. Instead, I am enjoying the time I have to spend on my hobby and catching up with friends. Keeping my mind occupied helps.

I hope you have a good weekend and I look forward to following your progress as well.

Joy xx
c_yeo
Member
12 years ago
Great to hear from you and doing well.

I have been following your progress. I am about 1 and a half session behind you so to see you doing well is encouraging. I am on day 10 now. Apart from 3 days of abdominal pain, I am doing ok.

Thanks for posting your progress.

Cis
c_yeo
Member
12 years ago
Great to hear from you and doing well.

I have been following your progress. I am about 1 and a half session behind you so to see you doing well is encouraging. I am on day 10 now. Apart from 3 days of abdominal pain, I am doing ok.

Thanks for posting your progress.

Cis
Bearteggie
Member
12 years ago
Yay! You and I are almost half way through chemo. Who would have thought it would go so quickly. Good on you for having "indulgent weekends". That is fabulous, better than having a weekend in hospital I am sue.

Have a great time in Tassie and I look forward to seeing some photos.

Big hugs

Joy xx
Bearteggie
Member
12 years ago
Hi Tanya,

I have been so inspired by the women here who have travelled this journey ahead of me too. Take care of your self and have a great weekend.

Joy xx
Bearteggie
Member
12 years ago
Big hugs back to you Tonya. Have a great weekend.

Joy xx

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