Forum Discussion
I am so glad to have found you - and that I inspired you to write - there are not many of us on here (the secondaries) I don't think - but the ladies on here are so lovely! I am new and getting to know them - but Im getting there! It's really hard isnt it. Like strange hard....I actually have no idea about what is real and what isn't anymore. I have decided my mantra is " I will not be defined by a number" and that being my age, how many years I have left and more... it's all so much to take in and I just don't want to constantly be looked at like I am about to die! There has to be more - even if it isn't the longest time! Right? I have faith that I will be here for a while and where I can really help other people and share and maybe solve some problems along the way that I wish were there for me. I am setting up a blog ihavecancer.co and it's going to be a place that I hope you will enjoy when its launched! It's a totally different take on this journey - I just need a place where we can be more than this life sentence and everyone constantly using the words "hope and pray" ....arrrgrgrg...
Food is crap - what chemo cycle are you on? My world revolves around toasted sandwiches. BUT I try to get things in like lasagne (simple simple version), baked potato, chili con carne with rice....when I have good days - I stuff all the goodness I can in - to boost my immune system - I also find Swisse Ultivite + Energy good (as i am tired all the time as well and my bones hurt) it's one of those fizzy tablets.
Beverages... well it's a massive issue - Diet Coke, Appletiser, Solo and Raspberry Cordial is a winner for me - i know - sugar central - but just do it now to get through... another thing that I have been working on is iced tea... what temperature beverages can you handle? mine vary... but I am serious about finding things that work! Water even tastes so different i can now pick the different waters from a bottle! I have a mate who is working on some beverage options - so as soon as I have them i will share! :-) I would kill for a glass of champagne but again tastes crap and makes me feel really sick!
OH.. and try this - crush up ice with watermelon and mint in it - it worked when i had the worst throat in the universe ... and water melon and mint work... the crushed ices is nice as well....you can make lots of flavours....if you can do cold.. and lastly - the only Tea i can drink is peppermint!
I want my life back too, i have really bad nights about that, and when my friends say i can't wait until life goes back to normal for you after chemo.. i just breathe on the outside and cry on the inside and realise that it will never be back to normal. So I have to work on a new normal. I have my 5th round of Chemo today - as you can see I can't sleep from the pills ..... Sxxx