Dear Shelli
What an amazing, strong person you are! You have been through so much. I have secondary cancer, but nothing like what you're experiencing-suddenly my lot in life" is relatively insignificant! I had a double mastectomy-twelve months apart, when they'd said the cancer probably wouldn't come back(yeah right!), & and have a small, stubborn bit of metastasised cancer in my lower back that hasn't changed size for 4 years.
The port is awful. They say it doesn't hurt, but it does. I got thru my chemo ok, the body just gave up between the second last & last one-I had to spend time in hospital and have two blood transfusions.
Sorry, just realized my comment came up when I hadn't finished!
Facebook is good, and I have a few of my friends from my breast cancer support group on there, but I do most if my ranting, whingeing and checking on new available meds on here. Also it's good to share experiences about specialists, and how different relationships between breast surgeon, oncologist etc affect you. I agree about the chemo nurses-they are the most unsung heroes!
I really feel for you needing to have treatment to your eyes-I cannot imagine what that must feel like-apart from very scary. At least you have a sense if humour! Isn't it amazing when this happens to us that we DO find an inner strength, don't cry too much, want to be independent etc. I was independent at the start, & got my poor sister, who wanted to give up her work and come and look after me really feeling useless. We remain very close, & eventually she understood why I wanted to go through the really hard bits on my own.
You are so young!! I am going to be 58 this year and have a grown up son and grandchildren. I have his wedding to look forward to in December. I'm so glad I found you this chilly morning. I woke up hot (I'm sure you experience the same) and with pain at 3am, so got up, took drugs&checked out the happenings on here.
Please know you are in my thoughts-you are amazing. If you'd like to find me on Facebook I am Kathleen Taylor & have exactly the same profile picture as I do on here. Keep in touch. If I'm not good at much, I am a good listener!
Sending hugs
Much love for a new friend
From Kathleen xxxxx
