Forum Discussion
Mich_x
13 years agoMember
IBC - Need to chat with my pink sisters
Hey girls
I needed to chat to you as I am a lil bit worried.
I have an ultrasound booked for this Tuesday. I have been noticing feelings like a sinuey/lumpy kind of feeling on the same breast they removed the lump from just over one year ago. I am also experiencing some pain and there are some minor red areas and minor orange peel looking skin. Very minor occasionaly crustiness to the nipple.
This is all on the same breast but on the inside of breast not the outside where lump was found. My breast is tender to touch.
I am hoping that it is nothing to worry about but I would love to hear from anyone else who has had these symptoms. I don't want to be told it is IBC but that is what I am scared about.
How can it happen so soon after lumpectomy, total axillary, 6 rounds of chemo, 7 weeks of radiotherapy followed up with a mammogram and an ultrasound.
Please tell me it is not possible.
I am sorry but I just needed to share with you because I believe I get such good feedback, advice, love and understanding here at BCNA, more so than anywhere else.
Please tell me I am being silly and that the ultrasound the doc has ordered is just to make me feel better.
Lots of love, Mich xoxo
27 Replies
- Mich_xMember
Hey girls
I just want to let you know the outcome from today......
I had my ultrasound. I asked hubby to come in with me. I asked him to ask questions if he felt it necessary and he did which was so wonderful. He had not been able to be a part of my first journey much due to working away so while he is with me I want to include him in anything and everything and he is happy to support me in any way he feels I need him. He is a very special person who like me is tired from lack of sleep and too much worrying. On top of that he has been made redundant due to the mining sector he was employed with not winning any new jobs and therefore no work for him. BUT he is a hard worker, highly respected and will get work very soon that I am hoping for.
Anyway the hospital and staff were lovely. The radiographer was very compassionate, very thorough and left nothing to chance. We spent a long time with her before she went out and chatted with the radiologist who then came in and went through the same process she had already been through. He also confirmed (in his broken english and us listening very hard - bless him) for us that there was orange peel like skin, redness and sinuey presence BUT they could not see anything untoward in that area on ultrasound so I am not to worry about that area at this stage but continue to be diligent.
They were both more concerned with the surgery area where I have a haematoma (spelling???) which I have had since day one and have had issues with but been told nothing to be concerned about so I haven't. They were unable to get a total clearance at time of surgery due to chest wall being in the way (how dare it!!! lol)
Therefore at the end of the day I walked away being told there is nothing untoward showing up on ultrasound. Continue to be diligent and continue to follow up with GP and chemo oncologist of which I have appts on 20th and 22nd of February at this stage.
I think I am relieved. I will run with the good news and get on with my life for the time being.
If anyone out there can tell me to the contrary I would love to hear from you.
Thank you girls so much for just being there for me as it has been a very trying time for me and my hubby.
Lots of love to you all, Mich xoxo
- dawngirlMember
You're surrounded by women holding you close today.
x
- Mich_xMember
Hey Dawngirl
I know exactly what you are saying. I hope I am freaking out for nothing. You are right there is nothing to say.
I keep going through my head that it is impossible. There is no way it can happen. I have not long finished chemo let alone radiotherapy let alone now being on an A I. Plus follow up mammogram and ultrasound towards end of last year. So really it just has to be totally and utterly impossible!!!
Needless to say I haven't had much sleep recently and none at all last night and really just want today to be over.
There is definitely something going on with my boob but please please do not let it be BC.
Lots of love, Mich xoxo
- Mich_xMember
Hey Dawngirl
I know exactly what you are saying. I hope I am freaking out for nothing. You are right there is nothing to say.
I keep going through my head that it is impossible. There is no way it can happen. I have not long finished chemo let alone radiotherapy let alone now being on an A I. Plus follow up mammogram and ultrasound towards end of last year. So really it just has to be totally and utterly impossible!!!
Needless to say I haven't had much sleep recently and none at all last night and really just want today to be over.
There is definitely something going on with my boob but please please do not let it be BC.
Lots of love, Mich xoxo
- dawngirlMember
Oh, Mich. I read this last night and got all tongue tied as to what to say..what is the right thing to say...scared to say the wrong thing....not much clearer this morning....but ^&*()*^&% the way this thing looms large, hanging out the back, coming back into our thoughts and igniting our fears. I'll keep all crossed for you today that it's your version of my freak out last week -- what I'd convinced myself over night was a skin met, turned out to be an age spot. I'm so sorry to read you are going through this stress and worry and really, really hope for you that it turns out to be a-ok.
x
- Mich_xMember
Hey Adean
Mmmmm I don't think we ever get past the what if's or the maybe's and you are right I will deal with what is sent my way. Cause that is what we do.
I have everything crossed as well for you my love, and let me tell you it makes it hard to walk this way lol hee hee.
Seriously I am wishing you well. Where are you at with your journey now?
I hope that both our if"s will be nothing to worry about.
Lots of love, Mich xoxo
- Mich_xMember
Thank you so much Sorelle, I so much appreciate your wishes and good vibes. I am sure it will be fine. By this time tomorrow it will be all over and I will be celebrating I am sure.
I will take all the positive vibes you can send me though at the moment.
Thanks again, wishing you well.
Lots of love, Mich xoxo
- Sorelle1969MemberHey Mich, so sorry you have to do this,it is so easy to expect the worse,and it's always in the back of our minds. Whatever the outcome your not alone xxxx Please let us know how you go. Will be sending lots of positive vibes your way love Sorelle xxx
- Mich_xMember
Thank you so much Annie for your kind works and support. Please think lots of positive thoughts for me for tomorrow.
I will keep in touch. Hopefully I just making a mountain out of a mole hill (or in my case a lumpy bumpy sore red boob) lol
Lots of love, Mich xoxo
- Mich_xMember
Hey Michelle
I hope you will do lots of "willing" for me and you have lots of energy to help me get over this hurdle.
I also hoping it is only from the rads, that is what I keep telling myself anyway and that I will now just have a very lumpy bumpy boob.
Thank you for being here for me, it means a lot.
How are you going now, are you back at work etc?
Lots of love, Mich xoxo