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Mich_x's avatar
Mich_x
Member
13 years ago

IBC - Need to chat with my pink sisters

Hey girls

I needed to chat to you as I am a lil bit worried.

I have an ultrasound booked for this Tuesday. I have been noticing feelings like a sinuey/lumpy kind of feeling on the same breast they removed the lump from just over one year ago. I am also experiencing some pain and there are some minor red areas and minor orange peel looking skin. Very minor occasionaly crustiness to the nipple.

This is all on the same breast but on the inside of breast not the outside where lump was found. My breast is tender to touch.

I am hoping that it is nothing to worry about but I would love to hear from anyone else who has had these symptoms. I don't want to be told it is IBC but that is what I am scared about.

How can it happen so soon after lumpectomy, total axillary, 6 rounds of chemo, 7 weeks of radiotherapy followed up with a mammogram and an ultrasound.

Please tell me it is not possible.

I am sorry but I just needed to share with you because I believe I get such good feedback, advice, love and understanding here at BCNA, more so than anywhere else.

Please tell me I am being silly and that the ultrasound the doc has ordered is just to make me feel better.

Lots of love, Mich xoxo

27 Replies

  • Hello my sweet Louie

    Thank you for your thoughts. It is hard sometimes to find the right words but you have done well thank you.

    Keep everything crossed for me and your love and support will be a comfort.

    Mmmmmm that person who said those words about temporary and why we are going through this must have been a very wise women hee hee.

    I will let you know how things go.

    You take care as well.

    Lots of love, Mich xoxo

  • Oooooh dear Annie

    That must have been so frightening for you with what you have gone through in the last week, must have been shocking.

    I haven't told anyone about this except hubby of course and all my sisters on BCNA as there is no need for anyone else to be worried.

    You are right in that there is always the fear of recurrence and I will be lucky if there is anything wrong that we have caught it early again. I am also hoping it is just my poor boob trying to get over what it has been through cause I know I am still trying to return to normal hee hee.

    All will be fine I am sure,. Please take good care of yourself.

    We are lucky in that anyone in the medical field knowing we have had the big C they become very diligent in our care.

    Lots of love, Mich xoxo

  • Hey Lara

    Thank you for your post luvy. I am keeping myself busy doing mundane stuff like washing and ironing and cleaning etc. but it is keeping me occupied at present.

    I have done it before and I am hoping to god I don't have to do it again BUT if I do I will be so much more aware and hopefully do things a lil different.

    I started noticing the sinuey feeling around Xmas time so have been concerned since then.

    I used to be quite complacent about checking my boobs and all that stuff but I'm not any longer cause I know if you catch it early you have a better success rate.

    I very much thank you for your wonderful support and I will let you know how I go.

    I hope you are travelling well.

    Lots of love, Mich xoxo

  • Hi Mich - I will be 'willing' you a clear ultrasound tomorrow with all the energy I have. Will be praying it's just some ropiness from all the rads last year. Sending you lots of love and hugs with everyone else. You know we are here whenever you need us. It is good news that they are checking so quickly even though (hopefully!) it will turn out to be nothing to worry about. Keep in touch. Michelle xxxx

     

  • Hi Mich, I've spent 10 mins trying to write something and just can't find the right words. I'm crossing fingers and toes for you for good results. You're a strong lady and always there for the rest of us, I hope you can feel the love and support coming your way. But if you have to get back on the round-about focus on the reasons why...it's temporary and we do what we need to to stay alive (Mmmm, think someone may have just said that to me!) Thinking of you Tuesday Xxxlouie
  • Mich id love to say its nothing to worry about.Only we know our bodies.And they have endured so much.We must be at about the same stage i was diagnosed Oct 2010. Our worst fear is that this dreaded cancer will recur.But as lara says if it is anything you have caught it early.I hope and pray that its your breast recovering from all its been through. I was hospitalized twice this week with severe migraines.my white cells were down.They did a AT scan thinking i had secondaries to the brain.I was beside myself.It was all clear thankfuly and please god let yours be too. Take care Mich and try not to think the worst as hard as that is. Annie x