Forum Discussion
I feel like Ive won the lottery!!
Have just spent the whole day having CT scans and Bone scans to see if this monster has spread.
IT HASNT. IM ALL CLEAR!!!
IM IN SHOCK!!
I have a bit of arthritis happening because Im getting old but thats all!!!
just need to get through my mastectomy and axillary clearance tomorow then I think I will feel like Ican begin to see a faint glimmer of a light!!
Thanks to you all for letting me whinge and sook and no doubt ill be doing more than that once Chemo starts xxx
81 Replies
Hi Jodie
Have felt with you all the way butr as already mentioned, knowledge is power!
I wasn't careful enough with my first port - it went in so easily, no pain & I was doing my usual yoga. Think this might have been the cause of the wound not healing as it never infected just wouldn't close. It worked well. Now with my second one in, I'm trying hard to take it easy & let other people do things. I'm not good at asking my help & as my husband says, he's not a mind reader. I have to ask! so this one is healing well & working well!
I did the chemo awareness course at HOCA & it was a good preparer for chemo. I have not had any dramas with nausea, have felt queasy occasionally but a cup of tea & something simple to eat & I'm fine. Also trying to keep up the walking.
Before, during & after chemo I drink litres of water to keep flushing the body. Was also told to go to the toilet when you need to, do not hold on. It means getting out of bed heaps of time during the night & was difficult during winter but I did it!
Also I'm eating very healthly - lots of greens, fruit, cutting out excessively sweet things, meat, fish & chicken. I've always tried to stick with organic food even before this BC journey. Apart from the metallic taste that developed in my mouth, i didn't lose my appetite.
I'm using coconunt oil on my skin (& scalp now) find its very soothing especially with the rashes & very natural. Smell like coconut ice for while but it does seem to disappear. I don't feel greasy or oily after a minute or 2.
Oh, rinshing & gargling 3-4 times a day. I use bicarb of soda, some use salt. But again, no ulcers & if a sore throat has started, it goes fairly easily.
Hope this is some help. You'll get there, just don't panic :)
Hugs Gina
- I'm having 3 rounds of FEC then taxol (taxel?) weekly for 12 weeks. I'm a googler and have read many people's experiences :-( . I know I shouldn't be reading but can't help it. Then I'm having radiation because they want to do everything for added insurance. I'm guessing that's a good thing? Xxxx
- I'm having 3 rounds of FEC then taxol (taxel?) weekly for 12 weeks. I'm a googler and have read many people's experiences :-( . I know I shouldn't be reading but can't help it. Then I'm having radiation because they want to do everything for added insurance. I'm guessing that's a good thing? Xxxx
- I'm having 3 rounds of FEC then taxol (taxel?) weekly for 12 weeks. I'm a googler and have read many people's experiences :-( . I know I shouldn't be reading but can't help it. Then I'm having radiation because they want to do everything for added insurance. I'm guessing that's a good thing? Xxxx
- I hope I follow in your footsteps. I'm having a port put in next Friday so at least I won't have to worry about my veins xx
- I hope I follow in your footsteps. I'm having a port put in next Friday so at least I won't have to worry about my veins xx
- I am not sure where you are finding the horror stories about people being sick from Chemo as this is not usually the case these days. Yes you might feel a little nausea but it is very unusual to actually vomit because of the improvement in anti-nausea medications. I found that between the medication and the terrific advice from people on this network that I got through without too much drama. Depending on what chemo you have you may not have much nausea at all. Everyone is different and it pays to keep an open mind and hope for the best. I only had nausea with my first 3 rounds of Chemo (FEC) and had no nausea with the last 3 rounds of Docetaxel. It was no where near a horror story and 5 weeks after finishing my Chemo I feel almost normal except for the lack of hair! It is the unknown that is difficult to cope with. Not knowing what side effects you will have. I read lots of advice on how to cope and knew what to do to help myself get through. It is not a great time in your life but it is doable and it is worth it to give yourself every chance of getting and staying well. :) Deanne xxx
Jodie, I had no nausea, none at all, they give you drugs to take a couple of days before (DEX), and drugs to take after. I did take the anti nausea drugs for a few more days after they said to. Many of the ladies are the same as me. .....just take it one day at a time. x
Jodie, I had no nausea, none at all, they give you drugs to take a couple of days before (DEX), and drugs to take after. I did take the anti nausea drugs for a few more days after they said to. Many of the ladies are the same as me. .....just take it one day at a time. x
- Linda, I'm scared of the nausea. I've never coped with vomiting very well. If they can get rid of the nausea I will feel so much better. Reading so many horror stories of how sick people are during chemo is terrifying me :-(
