Hi Maria
Welcome to a wonderful place of support. I see you have been given some great advice already!
I am only a few steps further than you and my children are only a little bit younger (9,6,4 - G,G,B). The early days were hard on the kids - they all coped differently and surprised me a little too. We have answered their questions as honestly and openly as we can - used resources we've been given too which have helped and mostly just involved them in what is happening and dealt with what it's thrown our way when it's thrown!
I second having someone with you at appointments and I also carry a special notebook in my handbag - for writing my own questions, notes, appointments, business cards and for my hubby to write down what the Dr's say. Remember there are no stupid questions so ask away.
It is a complete whirlwind at first - then all of a sudden it's a bit routine - I am only now coming to terms with my diagnosis and wondering where the "journey" is going to take me.
All the best.
Amanda xx