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Artferret's avatar
Artferret
Member
6 years ago

Hormone therapy, is it worth it webcast

@kmakm Way to go , Kate! You were awesome! And thanks for having my drug holiday question featured too. I am doing a diary for it but had not contemplated continuing it after resuming the drug but now i shall, good idea. 
There was so much info that i will have to watch it again if i can figure out how to do it! @Giovanna_BCNA can you or someone else let me know?

76 Replies

  • Ooh, thanks for that @Milly21! Great to hear from someone who's tried it and found it helpful. K xox
  • @kmakm. Nice to put the face to the name. Looking lovely. Now at the end you mentioned your thumb. Holey moley I've had a few months and a trigger joint too. Hard to open doors or change gear in the car. Had X-ray, nothing, had ultrasound and said the tendon was thickening. Could have either injections or surgery. That was all too much info for the thumb and scared the crap out of it. Over the last 2 weeks my thumb has done a complete reversal and is almost better. No pain at the base. Trigger gone, thumb pain gone and can use it again. I've been in the Anastrozle for 7 months and I'm getting over the side effects. Better than the Letrozole. 
  • Yes I’ve got another 7and half years,I was thinking other day if 5 years was still standard treatment,I would be able to say I’m halfway there!  I had hypnosis and found it quite useful,so good luck,
  • Thank you @Artferret. I had no control of what questions were asked. That was Kirsten.

    @arpie I would have preferred it if he had focussed a bit more on current developments too. If time and format had allowed I would have picked them up on the CBD oil thing; I did notice it. In the room it didn't read as condescending. More that they look at studies, and thus far studies are inconclusive about medical cannabis. I'm not ruling out giving CBD oil a crack. I just can't manage more than one thing at a time, and money is a big factor for me. My mum is helping me out with the acupuncture.

    My takeaway is that while there are statistically solid benefits to taking hormone blocking medicines, each person needs to be evaluated individually as to whether the benefits outweigh the negatives.

    Which is all well and good but doesn't take into account the psychological fear we have of recurrence, metastases and death. I'm too scared to come off the AI.

    So next stop for me on this shitty train ride will be hypnosis. And I'm going to explore some of those resources Martha was talking about.

    I'm no longer looking for solutions; there aren't any. I'm looking for ways to cope with the next nine years.
  • Well done, @kmakm - I didn't watch 100% (but think I video'd it!) so will watch it again in full.

    Some of the info the oncologist featured with his screen shots was 'old stuff'.  One of the research was 10 years old, one was 20 years old - so That is not always relevant to today.

    Adjuvant Tamoxifen - 2010
    Comparison AI data with EBCTCG - 1998

    I thought the Onc's comment on the use of cannabis (I know I mentioned CBD Oil, NOT cannabis - there IS a difference) was rather condescending.  Obviously more trials are required, as he said the trials had not been convincing. 

    (Don't be afraid to try it - I haven't taken a sleeping tablet or pain killer since starting on CBD 3-4 weeks ago.)