Hormone therapy, is it worth it webcast
@kmakm Way to go , Kate! You were awesome! And thanks for having my drug holiday question featured too. I am doing a diary for it but had not contemplated continuing it after resuming the drug but now...
Forum Discussion
@blondy If you do decide in the future to go the op and have the tendon cut, be sure to ask the doctor to be clear on what the potential impact will be. I've heard of so many of these types of operations that cause major issues afterwards and hear that the patient was never given that information.
I will be going to my onc this week to discuss the joint, etc pain. I was a bit surprised at how the question about prednisolone was summarily dismissed during the webcast as it was a miracle for me. I know it is not a long-term solution and I know I can't take it continuously but in a few hours after taking it I went from barely able to stand up and walk, to being able to move freely (even squat and stand up in heels). As I do not want to take a Letrozole holiday, I'm hoping that I can take this when things get really bad or alternatively, there may be another medication that doesn't have the same problems. The onc had suggested this as I was already taking strong painkillers and I am unable to take ibuprofen to boost them. The stiffness and pain is gradually creeping back after 4 weeks but it is nowhere near what it was and I have to be honest - the thought of going back to that state fills me with dread.
I will also ask him what he is aware of about enobosarm. Maybe Professor Tilley might be induced to come to the conference in July @Giovanna_BCNA and present his research?
I will be going to my onc this week to discuss the joint, etc pain. I was a bit surprised at how the question about prednisolone was summarily dismissed during the webcast as it was a miracle for me. I know it is not a long-term solution and I know I can't take it continuously but in a few hours after taking it I went from barely able to stand up and walk, to being able to move freely (even squat and stand up in heels). As I do not want to take a Letrozole holiday, I'm hoping that I can take this when things get really bad or alternatively, there may be another medication that doesn't have the same problems. The onc had suggested this as I was already taking strong painkillers and I am unable to take ibuprofen to boost them. The stiffness and pain is gradually creeping back after 4 weeks but it is nowhere near what it was and I have to be honest - the thought of going back to that state fills me with dread.
I will also ask him what he is aware of about enobosarm. Maybe Professor Tilley might be induced to come to the conference in July @Giovanna_BCNA and present his research?