Hormone therapy, is it worth it webcast
@kmakm Way to go , Kate! You were awesome! And thanks for having my drug holiday question featured too. I am doing a diary for it but had not contemplated continuing it after resuming the drug but now...
Forum Discussion
The article that @arpie posted was the sort of thing I was expecting to hear from the doctors in the webinar. I posed the question before and on the night, is anyone researching better hormone therapy drugs, and it was ignored.
Why don't they hear us better? Acupuncture and hypnosis. That's all we got on the night. Nothing else was canvassed (I'm ignoring the medical marijuana question because we wanted to know about CBD oil).
We want to take the drugs! We want to do everything we can to stop cancer recurring.
"...debilitating side effects, leaving patients feeling miserable and even ceasing to take the therapy."
I am left feeling the same as before, unsupported. Active treatment over, here's some horrible pills that may help. You're on your own now, away you go dear.
I don't expect my hand to be held and I accept that this is the best we have for now, but ffs answer our questions, help us understand, support us to do something difficult, and above all else, communicate with us.
I get more information and support for breast cancer from participating in this forum on my fricking mobile phone than anywhere else.
That's why when asked to sum up a response to the webinar (a question without notice) the best I could muster was you have to be very determined, and to advocate for yourself. So many doctors it seems, for whatever reason, can't communicate what we need. It's all on us, as individuals, to fight for what we need, information, options, anything.
It is sometimes brought to my attention that people feel sorry for me.
Don't feel sorry for me. Help me. Help us.
Why don't they hear us better? Acupuncture and hypnosis. That's all we got on the night. Nothing else was canvassed (I'm ignoring the medical marijuana question because we wanted to know about CBD oil).
We want to take the drugs! We want to do everything we can to stop cancer recurring.
"...debilitating side effects, leaving patients feeling miserable and even ceasing to take the therapy."
I am left feeling the same as before, unsupported. Active treatment over, here's some horrible pills that may help. You're on your own now, away you go dear.
I don't expect my hand to be held and I accept that this is the best we have for now, but ffs answer our questions, help us understand, support us to do something difficult, and above all else, communicate with us.
I get more information and support for breast cancer from participating in this forum on my fricking mobile phone than anywhere else.
That's why when asked to sum up a response to the webinar (a question without notice) the best I could muster was you have to be very determined, and to advocate for yourself. So many doctors it seems, for whatever reason, can't communicate what we need. It's all on us, as individuals, to fight for what we need, information, options, anything.
It is sometimes brought to my attention that people feel sorry for me.
Don't feel sorry for me. Help me. Help us.