Hormone therapy, is it worth it webcast
@kmakm Way to go , Kate! You were awesome! And thanks for having my drug holiday question featured too. I am doing a diary for it but had not contemplated continuing it after resuming the drug but now...
Forum Discussion
Just listening to it now as I type!
Well done Kate - a very measured, non emotional diatribe!! And especially well done for no apologies!! You were the clear winner on the night!! I don't think I heard the answer tho to your question re "What is done with the anecdotal evidence of side effects that patients give their Onc? Is it passed on to the manufacturer or researchers to 'research'?" Maybe I missed it.
I agree with @Sister - they didn't really cover the side effects & how to minimise AI side effects at all (tho I am listening to it again right now!) - which is strange, as that is basically why we all logged on to listen to them in the first place! I heard the acupuncture & hypnotise bits towards the end ....
He went thru the list of side effects that HE's heard (at the end of his spiel) and basically shrugged his shoulders as well!! :( I almost 'heard him' roll his eyes too! So yours was the 'bigger list', Kate!! No - it was actually a more complete list!
So re prednisone - he says joint pain with AIs is a 'short term problem - only whilst you are taking it!'! HELLO?? I wouldn't call 5-10 years of joint pain 'short term'!! Maybe we need to nobble his hips, knees & hands & see how long HE can stand it??
"If you need 'that much intervention - is this the right drug for you?' " HELLO? What are the other choices once you've been thru all the different AIs?? NONE!
There is PLENTY of anecdotal evidence that Medicinal Cannabis Oil IS benefitting cancer and arthritis patients - LOTS of shoulder shrugging & rolling of eyes there!!
My thoughts - ANYTHING that will make the side effects 'acceptable' so that we actually STAY ON the meds for the required period of time (or even longer if that may be of further benefit .....) is the path the researchers should be going down.
I wonder if they even KNOW the percentage of all the drop outs from AIs treatment due to all the side effects?
Be it CBD Oil, acupuncture, hypnosis or any other 'alternative' methods - if they help you stay ON the treatment - it has to be a good thing, altho admittedly, still no guarantee of of not getting a recurrence.
Well done Kate - a very measured, non emotional diatribe!! And especially well done for no apologies!! You were the clear winner on the night!! I don't think I heard the answer tho to your question re "What is done with the anecdotal evidence of side effects that patients give their Onc? Is it passed on to the manufacturer or researchers to 'research'?" Maybe I missed it.
I agree with @Sister - they didn't really cover the side effects & how to minimise AI side effects at all (tho I am listening to it again right now!) - which is strange, as that is basically why we all logged on to listen to them in the first place! I heard the acupuncture & hypnotise bits towards the end ....
He went thru the list of side effects that HE's heard (at the end of his spiel) and basically shrugged his shoulders as well!! :( I almost 'heard him' roll his eyes too! So yours was the 'bigger list', Kate!! No - it was actually a more complete list!
So re prednisone - he says joint pain with AIs is a 'short term problem - only whilst you are taking it!'! HELLO?? I wouldn't call 5-10 years of joint pain 'short term'!! Maybe we need to nobble his hips, knees & hands & see how long HE can stand it??
"If you need 'that much intervention - is this the right drug for you?' " HELLO? What are the other choices once you've been thru all the different AIs?? NONE!
There is PLENTY of anecdotal evidence that Medicinal Cannabis Oil IS benefitting cancer and arthritis patients - LOTS of shoulder shrugging & rolling of eyes there!!
My thoughts - ANYTHING that will make the side effects 'acceptable' so that we actually STAY ON the meds for the required period of time (or even longer if that may be of further benefit .....) is the path the researchers should be going down.
I wonder if they even KNOW the percentage of all the drop outs from AIs treatment due to all the side effects?
Be it CBD Oil, acupuncture, hypnosis or any other 'alternative' methods - if they help you stay ON the treatment - it has to be a good thing, altho admittedly, still no guarantee of of not getting a recurrence.