Forum Discussion
Hi again and just an opportunity to say thanks.
It’s been many months since I last visited this forum. It’s great to see so many familiar names, and catch up on stories.
In January last year I was standing on board a sinking ship - literally!
When my breast surgeon phoned to tell me my biopsies were positive for lobular Breast Cancer, I was standing on the replica deck of The Titanic. It was a school holiday activity with my youngest son and his friend.
It couldn’t have been a more appropriate place to get the news.
Fast forward to today, and it’s been a tumultuous year and a half to say the least, with many highs and many lows.
We celebrated my brother’s wedding, my youngest son’s bar mitzvah, my eldest son’s graduation and his successful application for a graduate program with an incredible international company. We welcomed my eldest daughter back from an overseas exchange program and enjoyed a fabulous two-week family holiday in Japan. We also welcomed a beautiful new puppy into our family.
We struggled with my elderly dad being in and out of hospital, and mourned his passing in January this year as well as the passing of three other elderly members of our family. My father-in-law fell and broke his hip. Our community felt the terrible loss of three young women - two who were friends of mine, to cancer, and one who I knew as a colleague, who lost her long battle with depression. My place of work recruited a new executive manager who made my life at work (after 17 years of loving my job every day) a misery for the nine months it took until she left and we returned to normal.
And alongside all of that, I endured a double mastectomy, six months of chemo, seven weeks of radiation, and failed air-expanders.
But in all honesty, my journey so far has been incredibly fortunate. I was so so lucky to sail through surgery and treatment, being able to work and function normally throughout it all. This forum was an absolute godsend in so many ways and I will never take for granted all the patient, supportive advice I gained from the many generous contributors and the friends I’ve gained along the way.
Now I’m finding it a little more challenging as I struggle to lose the weight I put on, wait impatiently for my hair to grow, deal with the effects of letrozole, and contemplate recovery from DIEP reconstruction, which is coming up in just five days.
So I’m really just taking an opportunity to say a huge thank you. I honestly couldn’t have made it through, without this forum and I’m now in a much better place to be able to give back. I’m looking forward to sharing this next journey in the ‘choosing breast reconstruction group’ in the hope that I can help others contemplating the same thing.
Bring on the FOOBS!! Truthfully after a year and a half of being flat-chested I’m wondering if I’ll have to adjust my balance! 😂😂
And about that Titanic story? Well, when you walk into the exhibition you get a ticket on which there’s the story of one of the passengers, written on the back. When you get to the end of the exhibition you can look on a board to discover the ‘fate’ of your passenger.
Mine survived ❤️
In January last year I was standing on board a sinking ship - literally!
When my breast surgeon phoned to tell me my biopsies were positive for lobular Breast Cancer, I was standing on the replica deck of The Titanic. It was a school holiday activity with my youngest son and his friend.
It couldn’t have been a more appropriate place to get the news.
Fast forward to today, and it’s been a tumultuous year and a half to say the least, with many highs and many lows.
We celebrated my brother’s wedding, my youngest son’s bar mitzvah, my eldest son’s graduation and his successful application for a graduate program with an incredible international company. We welcomed my eldest daughter back from an overseas exchange program and enjoyed a fabulous two-week family holiday in Japan. We also welcomed a beautiful new puppy into our family.
We struggled with my elderly dad being in and out of hospital, and mourned his passing in January this year as well as the passing of three other elderly members of our family. My father-in-law fell and broke his hip. Our community felt the terrible loss of three young women - two who were friends of mine, to cancer, and one who I knew as a colleague, who lost her long battle with depression. My place of work recruited a new executive manager who made my life at work (after 17 years of loving my job every day) a misery for the nine months it took until she left and we returned to normal.
And alongside all of that, I endured a double mastectomy, six months of chemo, seven weeks of radiation, and failed air-expanders.
But in all honesty, my journey so far has been incredibly fortunate. I was so so lucky to sail through surgery and treatment, being able to work and function normally throughout it all. This forum was an absolute godsend in so many ways and I will never take for granted all the patient, supportive advice I gained from the many generous contributors and the friends I’ve gained along the way.
Now I’m finding it a little more challenging as I struggle to lose the weight I put on, wait impatiently for my hair to grow, deal with the effects of letrozole, and contemplate recovery from DIEP reconstruction, which is coming up in just five days.
So I’m really just taking an opportunity to say a huge thank you. I honestly couldn’t have made it through, without this forum and I’m now in a much better place to be able to give back. I’m looking forward to sharing this next journey in the ‘choosing breast reconstruction group’ in the hope that I can help others contemplating the same thing.
Bring on the FOOBS!! Truthfully after a year and a half of being flat-chested I’m wondering if I’ll have to adjust my balance! 😂😂
And about that Titanic story? Well, when you walk into the exhibition you get a ticket on which there’s the story of one of the passengers, written on the back. When you get to the end of the exhibition you can look on a board to discover the ‘fate’ of your passenger.
Mine survived ❤️
21 Replies
- Hi @Caz1 - woo hoo for only one month of AC to go!
Well, this is the very first puppy for me and my kids, although my husband had dogs when he was growing up. He's been wonderful for our family!
We would have loved to have bought a rescue dog but the reason that we have never had a dog before is because my husband is incredibly allergic - so much so that we thought we'd never be able to have one. Since he changed his diet a couple of years ago, his allergies are under better control and so we took the plunge although we had to find the most anti-allergy dog possible and had to go via a breeder. We now have Harley, the cutest 2nd gen moodle. Mum is a moodle (maltese x toy poodle) and dad is a toy poodle. He's been an absolute tonic for the whole family!
With six of us in the house, and my kids old enough to look after him (I have three 20+ and one aged 13) it's been a breeze. We all took turns going to puppy school then ignoring most of what they taught us and spoiling Harley terrible hahaha.
It will absolutely be ok - you will love it! And your pup will sense it when you're tired, and just be there to cuddle you. What a wonderful way to celebrate the end of AC chemo! Please post a photo. Here's one of Harley :) - Hi Eastmum, what a year! It’s inspiring to hear all that you did ,as I am right at the start of my journey. :)
I am very interested in knowing how you went with the new puppy. We are getting one too in about a month at the end of my AC chemo. Visited today. It was so good for my soul.
Ive been waiting for ages for this pup....but I’m a little worried inside about how tired I’m going to be. Please tell me it’s going to be ok! - Glad the story helped. I’m doing well :)
Paula xxx - All the best for your recon xxxx.
- Thanks @arpie I’ve joined the lobular group - there’s fantastic info on there!
Brilliant two-year milestone coming up for you - we just have to take one step at a time, right?
I’ve chosen DIEP and having it done on Friday. I’m a bit apprehensive about it all but there are fabulous case histories on here that are incredibly inspiring and very helpful.
Xxxx - Hi @Eastmum - great to see you back again!! Wow - you HAVE had a tumultuous time of it! Great to tick off all the family milestones, - and condolences on your losses. SO glad to read the witch had left the job so you could get back to normal again!!
There is a dedicated Lobular group now - if you'd like to join? @Giovanna_BCNA should be able to send you an invite!!
Yes, as a fellow Lobbie .... I was lucky to miss out on the chemo, having the surgery & rads & tabs ..... and not doing too badly just now, coming up to my 2nd anniversary of finding the lump (scans etc next month.)
Take care, all the best with your recon decision making! xxx - Nah, still on the fence. I suspect that I'm going to stay that way. At my last surgeon's appointment the skin was still too tight, anyway.
- Thanks @primek - yep, we find resilience in the most extraordinary circumstances sometimes. You’ve definitely paid it forward for an eternity! Your advice is always so generously given - thank you xx
Thanks @Sister - I’ve thought of you so often as we’re the same age, both lobular girls and were diagnosed around the same time. I’ve caught up a little bit with some of your posts. I hope you’re doing well. Thanks for the recent info about lobular. I’ve really found it fascinating reading. You’re so right about survivorship. I’m finding it much much tougher than I did during treatment. Have you made any decisions about reconstruction yet?
Hi Paula @mum2jj - thanks for the tip. I’ve just read her whole story and it’s really helped a lot! I hope you’re well
xxxxxx Welcome back @Eastmum, what a year you have had. Well done you to just be here to tell the tale.
All the best for your upcoming surgery. We have a lovely lady in our choosing breast reconstruction group who has just had your surgery and has posted about it.
hugs
Paula xxx
- Welcome back @Eastmum Good to hear from you again. Survivorship is not the easy ride that we expect but at least we're here!
