Hello

Hi Lesley, I'm so sorry things have been so difficult for you :(. This path is a very, very challenging one indeed! I also have mets in my bones (and lungs). In an eight week period, I went from having no bone mets at all, to having very aggressive and  widespread bone mets in my skull, ribs, spine (thoracic and lumbar), pelvis and hip (quite extensively in my hip apparently). They were going to put me on Zometa, but decided at the last minute to put me on a new drug called Denosumab (Xgeva) for my bones. Denosumab is a newer drug that is used for bone mets - it has taken over from Zometa apparently and works differently to Zometa. I'm pleased to say that Denosumab has stopped the spread of my bone mets in their tracks, and I have just found out that my scans are showing evidence of healing in the bones! I was told last week that this drug can actually reverse the damage done by bone mets...I couldn't believe it! Denosumab is a monthly injection under the skin (no veins needed), usually in the belly, and is very quick and easy to have. I wonder if this is an option for you Leslie? Perhaps you can ask about it? I have it as a public patient in a public hospital.

I also had radiotherapy on my spine but for me it helped relieve the pain. I know you said the radiotherapy didnt help, but can you try it again in another area and see what happens? Is it worth another go?

Sending you lots of positive vibes Leslie, take care Celeste ?