Forum Discussion
Zoffiel
9 years agoMember
It sounds like you need to get your oncologist to tweak the medications you are taking after your chemo. AC is tough, but there are ways of helping with the side effects. Unfortunately, most of the time we just get prescribed the basics and it is not until things go wrong that things are changed. For example, I didn't know that Claratyne would make such a difference to the pain I was experiencing from the Neulasta shot. If it still wiping you out to that extent, please ask if there are any changes that may help.
The only other option I can think of is get on the phone and start ringing some of your local charities. I've googled where I think you may live and there are a few. Start with someone fairly reputable like Anglicare (who won't be likely to help as they do mainly aged care) and ask them if they know who may have community volunteers. I've got to say I'm reluctant to recommend this course of action as I don't have a great deal of trust in any religious organisations, but it sounds like you are at your wits end. Perhaps the local hospital auxillary may do home visits as well.
As for taking your meds, can you set an alarm on your phone to help you remember? If you do that on a day when you are feeling OK you can set it up as appointments and you can leave a message for yourself to remind you what you should be taking and when. The Reject Shop sells little pill packs--like Webster Packs--that you can use to make sure you can keep track. They are really cheap, like $2. Id say the nurses in Oncology would help you set that up.
. Marg
The only other option I can think of is get on the phone and start ringing some of your local charities. I've googled where I think you may live and there are a few. Start with someone fairly reputable like Anglicare (who won't be likely to help as they do mainly aged care) and ask them if they know who may have community volunteers. I've got to say I'm reluctant to recommend this course of action as I don't have a great deal of trust in any religious organisations, but it sounds like you are at your wits end. Perhaps the local hospital auxillary may do home visits as well.
As for taking your meds, can you set an alarm on your phone to help you remember? If you do that on a day when you are feeling OK you can set it up as appointments and you can leave a message for yourself to remind you what you should be taking and when. The Reject Shop sells little pill packs--like Webster Packs--that you can use to make sure you can keep track. They are really cheap, like $2. Id say the nurses in Oncology would help you set that up.
. Marg