Get Connected Day!

Hi Rubes, and welcome.  I just wanted to give you the link to the Advanced Breast Cancer group that Louise mentioned.  You can find it here: http://www.bcna.org.au/group/4218.   It is a private group, so just click on the 'request membership' link on the left hand side of the page, and marls will approve your membership next time she's online.

Di

Hi Rubes

There is a special group on here for ladies with Advanced Breast Cancer.  You would probably be better asking your question there.....I am not sure of the link but hopefully someone can point you in the right direction.  Good luck x

Hello everyone, new to this blogging, I have had BC twice, 2000 & 2002. I now have Metastatic BC in my bones. Just wondering if anyone reading this is on Taxetere .

Hello everyone, new to this blogging, I have had BC twice, 2000 & 2002. I now have Metastatic BC in my bones. Just wondering if anyone reading this is on Taxetere .

Hi there I found this link tonight (first treatment tomorrow) probably would've been nice to start a little earlier but better late than never.

I'm in Hobart, Tasmania and was looking and hoping for other ladies that might be around me in a similar situation, or even maybe finished theirs (be nice when that day is close for me) although this is one of the good things about the online world doesn't really matter where anyone is does it?

LikeI said my first treatment is tomorrow - I'm having 4 chemo treatments then radiation after that - I've done a little wig window shopping but not purchased one yet, I'll go again next week for that although it seems a lot of ladies don't go with the wigs just choose the scarves, better go get some of these too just in case :)

Really look forward to chatting with anyone who feels like it

Good luck, big hugs and  smiles to everyone that reads this :)

Hi there I found this link tonight (first treatment tomorrow) probably would've been nice to start a little earlier but better late than never.

I'm in Hobart, Tasmania and was looking and hoping for other ladies that might be around me in a similar situation, or even maybe finished theirs (be nice when that day is close for me) although this is one of the good things about the online world doesn't really matter where anyone is does it?

LikeI said my first treatment is tomorrow - I'm having 4 chemo treatments then radiation after that - I've done a little wig window shopping but not purchased one yet, I'll go again next week for that although it seems a lot of ladies don't go with the wigs just choose the scarves, better go get some of these too just in case :)

Really look forward to chatting with anyone who feels like it

Good luck, big hugs and  smiles to everyone that reads this :)

Hi Nicky, and welcome. :)

Just wanted to let you know that this is an older post, so it's possible the other network members won't see your comment here. 

Best way to get an answer to your question is to make a new post in your own blog (see the link in the pink box on the right side of the page labelled 'my blog').  You can just copy and paste this text again if you like, to make life easier.

When you post in your own blog, it will show up on the 'All Posts' page (which is here, if you haven't found it yet: http://www.bcna.org.au/node/all/blog/network), and anyone who has an anwer can jump in.

Hope that helps. :)

Di

Dear anyone, 

My name is Nicky, 49 yrs, double mastectomy 18months ago, have been into Medicare twice to ask about breast reconstruction rebates and burst into tears the minute I open my mouth and have to leave - they will start selling tickets soon.  Is this normal? 

Also, is there anywhere in this network where I can ask about a prospective surgeon - whether anyone has experience, whether I should be worried he has so many available times?

If you've time to answer I'd be v grateful.  So nice reading your posts. 

Best, Nicky  

Sue, how are you .... took me a little while to find this .... the original blog on this "Get Connected Day"/ "Getting Started" has been on-going for a couple of years now.

You and your family are certainly having a rough time of it aren't you?  May I make a constructive suggestion - hope you don't mind.

Go to your own home page and write this message on your own blog page.  It will then come up in "Latest Network Posts" and be open for every one to read.

You will be surprised the number of offers of help and advice you will have, especially in Hobart.

I can understand the fear and trauma you are feeling.  Have you sent for or been supplied with the My Journey Kit.  This is a brilliant BCNA resource and is provide absolutely free to everyone in Aust diagnosed with breast cancer.  There is so much information and help avaiable through this sight and of course there are our online members who are here to be your support crew.

You will find that as you blog, no matter what you do or say there will be someone who has "been there, done that" and we are all there fo you ... no matter if you want to laugh, cry, rant, we wil be there to laugh, cry, rant with you.

Please feel free to message me ... I have sent you a "friend request" .... hope to hear from you soon.

Take care of yourself ....

Luv Shirl x0x

Chemo 1 went amazingly well - no nausea, no spew, no runs, just a bit of constip but Panadol (cos I got a period at the same time (BLERRGHHH!) always glues me up. Herbal laxative sorted that. Hope that was my last period ever... but one day at a time, eh?

No real pain, just a twang here and a pop there and a prickle over yonder and none of them lasted. Chemo High is great! Saw onco today and he says I'm doing well too. But still wants to do 6 cycles.

Happy to 'friend' u, Lee as I'd say on Facebook (yes I have no life, am a Fb tragic :-)

Anne