Forum Discussion
Di_BCNA
16 years agoMember
Get Connected Day!
This is the Get Connected post, which is a place where you can introduce yourself if you'd like to widen your connections.
What to do...
Comment to this post (use the comment form at the bottom of the page) with a short note about yourself and who you're looking to connect to. Easy!
If you see someone with experience similar to yours, who you'd like to connect to, then just click their username (in their post) and you will end up on their profile page. Then all you need to do is look on the left side of the page under their picture and you'll see an "add contact" link and follow the prompts.
Why connect to others?
One of the good things about connecting to others, is that all of their blog posts will show up on your homepage in a reading list. So if you haven't visited the site in a few days, you'll still see what everyone is up to!
Important note
Remember to check your own privacy settings on your "edit" page. There's no need to reveal anything personal or private, but if you want others to connect to you, you should make some of your My Profile settings "public" so others can find out a bit about you (eg. 'my story', 'about' me' and 'breast cancer experience').
If you're not sure what to do, you might like to read this post on how to change your privacy settings.
Have fun!
Di
165 Replies
- MelMember
Hey there lynne
ive been off the computer for a few days so welcome i am also new to the site and ive found it really great to chat to others about their experiances.. Congrats on finishing chemo! what an awesome feeling it is to get to the last one!
i didnt find radio a difficult thing, was a walk in the park compared to chemo!
I drove myslef each day and didnt really suffer tiredness, just a bit of redness at the site but other than that i was thrilled to be doing normal stuff without the "chemo week" looming!
Celebrate that last chemo, and enjoy that champagne!
will be thinking of you on friday, sending you lost of strength to get past that last one:)
take care
Mel
- w_a__kazMember
Yes Lynne, life does slow for a bit. I am just gone 4 years from treatment and it's a vague memory. People ask me questions and I really have to think wether this or that happened (brain freeze/chemo head,lol) I am back gardening, paving (last year six pallets by myself), leadlighting etc. Have joined a gym recently so hang in there, listen to your body, take it easy and if you havent checked out a support group in your area (as I feel you will need someone with similar experiences as to share that bubbly with, lol) then maybe consider it. BCNA is really quite wonderful for getting that little bit of tlc when most needed. Hope tratment goes well on friday, be thinking of you (even though I will be at the 2nd conference for younger woman in (hopefully) sunny Gold Coast) and by the way i cant believe you have a 26 year old!!!! you look wonderful. chat soon, Kaz
- LynneMember
Wow! What an incredible welcome, thank you all. I feel as though I have found a group of great friends; awesome feeling.
Having final chemo treatment this Friday which I am both celebrating and dreading. Radio to start about 4 weeks later. They tell me fatigue will still be an issue with radio. I think I find this the hardest side affect to deal with; the lack of ability to do anything. I would love your feedback on how long it has taken for you to feel some sense of normality. I understand this will vary for each individual as well as depend on the type of treatment.
Am thinking of buying a bottle of French champagne in about 4 weeks to celebrate what I am hoping will be some sense of normailty although I do wonder what that means these days. Will we ever feel 'normal' again? I feel as though I am a member of an exclusive club, not one any of us aspire to but one which gives us such a strong bond with each other - a gift in itself.
Thank you again for opening your arms and hearts to me.
Lynne
- LynneMember
Hi Kaz thank you, it is good advice which I have pretty much always adhered to. As I used to say to my ex husband "there is more to my life than washing floors!" My Aunt used to have a sign saying the same thing too! Always remembered it lol. I remember my mother coming home after work, cooking dinner for us all (5 kids) and then standing at the ironing board ironing as she watched the tv when all she wanted was to sit down and have a cuppa. That had a huge impact on my attitude to housework! Still, it's hard to be surrounded by mess when spending so much time camped out at home. Managed to improve it all a little yesterday thank god, so is currently bearable.
Lynne
- LynneMember
Hi Celeste this is my third try at replying. It seems the website gets a little unhappy about pressing backspace too many times too fast lol. Either that or my skills on the keyboard have gone completely awol!. Certainly my brain is not functioning as it once did! What age is your daughter? Mine is going on 26 and is my 'positive' ambassador. The weather does have a huge impact on my levels of 'happiness'. I suspect too that this particular cocktail is impacting my mood quite strongly, plus the chest cold just added to the woes lol!.
Did manage to achieve some things around the house yesterday which felt good. even did a small square of paving lol. Didn't know I had the energy til I started. I just start something and go slowly, everything is 'one step at a time' these days.
Think I will post this before it all disappears again. Thank you for contacting me
Lynne
- LynneMember
Lol Shirl I'm in Melbourne and the promised18-19 did not evenuate (at least it didn't feel like it) and yes I did manage some lovely time in the sun. Even vacced the floors yesterday! OMG will wonders never cease lol
- w_a__kazMember
Hi Carolyn, Sounds like your on top of things which is wonderful. Will be thinking of you on thursday and hope you get good news. It's very hard staying on top with what your going through and juggling family/ husbands and all so pat yourself on the back, your a legend. I have had my marker sit at 14 for a year and a half so excellent news it's 8. Hope to chat soon, we are all here for you if you need to chat, laugh or cry, your never alone with BCNA consider us your extended family. :)
- Carolyn71Member
Hi Mel,
I'm Carolyn. I also have secondaries in my liver, that were found before the primary in my breast. That was August last year & I have had two rounds of chemo & I'm now taking Letrozole. I should add that I'm now 39 & have 3 girls (twins 11 yrs & 1 - 12yrs) & a husband. My specialist is now keeping tabs on my cancer with me having a blood test every 6 weeks (was monthly) & looking at my cancer marker, liver function. So far the marker has kept down to 8. I have a video conference, for my latest results, this Thursday. So here's hoping it's still staying down.
Take Care,
Carolyn.
- moira1Member
Hope you coped okay with chemo, and i am sure you will be glad it is nearly over. but hey never mind the housework, its always there waiting for us when we are ready to do it. you can add me to you list of contacts and if i can help you with anything i will. take care Moira
- ShirlOMember
Hi Lynne, just a quick note to check in and see how you are ..... hope you're feeling a little better than last time we "spoke".
Take care .....
Shirl xx