Forum Discussion
Di_BCNA
16 years agoMember
Get Connected Day!
This is the Get Connected post, which is a place where you can introduce yourself if you'd like to widen your connections.
What to do...
Comment to this post (use the comment form at the bottom of the page) with a short note about yourself and who you're looking to connect to. Easy!
If you see someone with experience similar to yours, who you'd like to connect to, then just click their username (in their post) and you will end up on their profile page. Then all you need to do is look on the left side of the page under their picture and you'll see an "add contact" link and follow the prompts.
Why connect to others?
One of the good things about connecting to others, is that all of their blog posts will show up on your homepage in a reading list. So if you haven't visited the site in a few days, you'll still see what everyone is up to!
Important note
Remember to check your own privacy settings on your "edit" page. There's no need to reveal anything personal or private, but if you want others to connect to you, you should make some of your My Profile settings "public" so others can find out a bit about you (eg. 'my story', 'about' me' and 'breast cancer experience').
If you're not sure what to do, you might like to read this post on how to change your privacy settings.
Have fun!
Di
165 Replies
- Hello, my name is Adrianne, I am 45 years old & mum to a 4 year old son. On 30th July I was diagnosed with a grade 2 Invasive Ductal Carcinoma in my left breast. Have had fine needle aspiration on lymph nodes & core biopsy. My GP has referred me to our local public hospital for surgery & I will find out more at my GP appointment tomorrow. I have been told I will have surgery within two weeks. Would love to hear from other ladies with this type of cancer. I have gone through all types of emotions & now just want the surgery/treatment to begin.
- VivWMember
Hi Lisa, I have Breast Cancer 49, my sister 46 when diagnosed with Bowel Cancer the same as our Mum(73) and her brother RIP (63), his two daughers have cancer, 45yo breast and the other who we lost last year to lung cancer at 52.
So much cancer but my oncologist has said my type of cancer is not common with the BRAC1 or 2 gene. I am a big googler and Breast/Ovarian/Bowel cancers run together. When I am finished with all treatment I will be in touch with a genetics person. I am in Wodonga, so Melbourne is the closest for me to see someone. I will chase this up for my 3 children, as cancer is touching us at a younger age with each new generation.
Do not accept any brush off from anyone, get all the tests you need, mammograms do not always work - my breasts are too dense, so my bc was picked up 6 months after mammogram with an ultrasound, fantastic gp wanted my fatty tissue looked at again. If you dont have a good gp get one.
All the best for your mum,
VivW
- lisavwMember
Hi everyone.
I have just found out my mum was diagnosed w TNBC over a year ago and I was only told a few days ago because it returned.
I called my mum she seems ok but saddened that it ha returned of course. I am struggling to understand why her surgeon has told her no need for her 4 daughters to have BRAC1 mutation test.
Anyone here able to shed light on this?
Thanks in advance
Lisa
- MarlzMemberI was diagnosed on 21st May '13. Had lump out on 30th May plus axila clearance as 1 node had cancer in it. I started chemo on 1st July and will have 3 more dense doses then 12 weekly doses then 5 - 6 weeks of radiation after chemo finished. I was wondering how many people have had CT & Bone Scans and why I have not been offered these options. I think my anxiety is mainly because I am scared that I have cancer somewhere else as well. Can anyone enlighten me regarding scans we should have when we have been diagnosed with breast cancer?
- MarlzMemberI was diagnosed on 21st May '13. Had lump out on 30th May plus axila clearance as 1 node had cancer in it. I started chemo on 1st July and will have 3 more dense doses then 12 weekly doses then 5 - 6 weeks of radiation after chemo finished. I was wondering how many people have had CT & Bone Scans and why I have not been offered these options. I think my anxiety is mainly because I am scared that I have cancer somewhere else as well. Can anyone enlighten me regarding scans we should have when we have been diagnosed with breast cancer?
- ShirlOMember
Hi there Lala .... let me add my greetings to Daina and Heidi ... what ever stage you are up to in your journey you will find friends here who are willing to guide you along the path.
As you cruise through our blog pages you will fine others who have "been there, done that" ........ many of our members have walked in your shoes and are only too happy to travel this road with you
Stay in touch with us ... you can also find us on facebook at Beacon BCNA (send a friend request) and Breast Cancer Network Australia.
One of your jobs now is to look after Number One ... YOU ... You are your number one priority.
Take care
Luv Shirl x0x
- AnonymousNot applicable
Hi Lala,
I just wanted to jump in and say welcome and I hope you are recovering okay after your surgery - It sounds like your having a tough time of it :-(
I am not sure if you have come across the 'Women living with advanced breast cancer' group but you can find it here: http://www.bcna.org.au/group/4218. It might help to join the group, make an introductory post and connect with others that way.
Let me know if you need a hand finding your way around.
~Daina
- HeidihoeMember
Hi Lala, (lovely name)
I'm no good cause I can't even work this site however just wanted to wish you luck and it may be a whirlwind but go with the tide and just keep your head up above water and hopefully it's over soon and you can come back to normal.
My thoughts are with you
it must be so scary and overwhelming, I'm sorry for you
Good Luck
Heidi
- HeidihoeMember
Hi Mandy
Heidi in Ballarat here
I read your note, hope your treatment went well.
Hope you coped with all the shit like scalves, running to loo etc..
Thoughts are with you XXX
- HeidihoeMember
Hi Sue,
Go to another GP and ask to have BRAC 1 & 2 your immediate family all have BC and you have no time to waste.
You could be lucky and be able to stop worrying ordo something to save your life while you have the chance!
Did you see 60mins 3 sisters youngest left it too long thought had more time now???? Very ill.
I can't get tested as they don't believe I have enough immediate family effected. Two dead cousins and third got BC now???
Go girl....
don't wait...
XXX H