Forum Discussion
Di_BCNA
16 years agoMember
Get Connected Day!
This is the Get Connected post, which is a place where you can introduce yourself if you'd like to widen your connections.
What to do...
Comment to this post (use the comment form at the bottom of the page) with a short note about yourself and who you're looking to connect to. Easy!
If you see someone with experience similar to yours, who you'd like to connect to, then just click their username (in their post) and you will end up on their profile page. Then all you need to do is look on the left side of the page under their picture and you'll see an "add contact" link and follow the prompts.
Why connect to others?
One of the good things about connecting to others, is that all of their blog posts will show up on your homepage in a reading list. So if you haven't visited the site in a few days, you'll still see what everyone is up to!
Important note
Remember to check your own privacy settings on your "edit" page. There's no need to reveal anything personal or private, but if you want others to connect to you, you should make some of your My Profile settings "public" so others can find out a bit about you (eg. 'my story', 'about' me' and 'breast cancer experience').
If you're not sure what to do, you might like to read this post on how to change your privacy settings.
Have fun!
Di
165 Replies
- HeidihoeMember
Take care Adrianne and love your small son every day with passion, they are what we live for
Family
Friends
Loveones
XXXX
- HeidihoeMember
I really loved your note back Julie to ShirlO
I hope people here can help you in your journey
They are wonderful souls
Take Care
xxxx
- Julie59Member
Many thanks for your reply and offer to connect me to somebody who you think may be of assistance.
My late Mum's name was Shirley, so how ironic that the first person to contact me is named Shirl. You must be an angel sent from above to guide me on this journey.
I've been told by others that if nothing else, you make some lifetime friends from this bloody disease that tries to take a hold of our bodies.
Best Wishes - Julie X
- VivWMember
Lumpectomy back on 30/4, IDC 20mm stage 2, grade 2, ER+, PR+, HER2 neg, clear margins and lymph nodes clear. Apparently the best results considering.
I would strongly reccomend to everyone to get all your reports and have a good read, and talk to someone else. I wasn't put in touch with bcna until I was about to start radiation. These blogs are such a fantastic source of information. WE ARE NOT ALONE IN OUR THOUGHTS.
Big fear now is recurrence, higher with just having lumpectomy. No one told me that. Should I have recurrence in same breast reconstruction more difficult because of radiation.
VivW
- VivWMember
Lumpectomy back on 30/4, IDC 20mm stage 2, grade 2, ER+, PR+, HER2 neg, clear margins and lymph nodes clear. Apparently the best results considering.
I would strongly reccomend to everyone to get all your reports and have a good read, and talk to someone else. I wasn't put in touch with bcna until I was about to start radiation. These blogs are such a fantastic source of information. WE ARE NOT ALONE IN OUR THOUGHTS.
Big fear now is recurrence, higher with just having lumpectomy. No one told me that. Should I have recurrence in same breast reconstruction more difficult because of radiation.
VivW
- ShirlOMember
Hi Julie, you certainly have a lot on your plate at the moment and it doesn't help much living in a new area.
I will connect you with one of our Community Liaisons Mandy Forteath who lives in Launceston. If she can't help you with the info you need she will be able to put you in touch with someone who can.
Will be thinking of you as you travel on this new and confusing journey. Stay on line, there is so much support given to everyone .... one thing about this bloody disease we make and keep friends for life
Love .. Shirl x0x
- Hello, my name is Adrianne, I am 45 years old & mum to a 4 year old son. On 30th July I was diagnosed with a grade 2 Invasive Ductal Carcinoma in my left breast. Have had fine needle aspiration on lymph nodes & core biopsy. My GP has referred me to our local public hospital for surgery & I will find out more at my GP appointment tomorrow. I have been told I will have surgery within two weeks. Would love to hear from other ladies with this type of cancer. I have gone through all types of emotions & now just want the surgery/treatment to begin.
- VivWMember
Hi Lisa, I have Breast Cancer 49, my sister 46 when diagnosed with Bowel Cancer the same as our Mum(73) and her brother RIP (63), his two daughers have cancer, 45yo breast and the other who we lost last year to lung cancer at 52.
So much cancer but my oncologist has said my type of cancer is not common with the BRAC1 or 2 gene. I am a big googler and Breast/Ovarian/Bowel cancers run together. When I am finished with all treatment I will be in touch with a genetics person. I am in Wodonga, so Melbourne is the closest for me to see someone. I will chase this up for my 3 children, as cancer is touching us at a younger age with each new generation.
Do not accept any brush off from anyone, get all the tests you need, mammograms do not always work - my breasts are too dense, so my bc was picked up 6 months after mammogram with an ultrasound, fantastic gp wanted my fatty tissue looked at again. If you dont have a good gp get one.
All the best for your mum,
VivW
- lisavwMember
Hi everyone.
I have just found out my mum was diagnosed w TNBC over a year ago and I was only told a few days ago because it returned.
I called my mum she seems ok but saddened that it ha returned of course. I am struggling to understand why her surgeon has told her no need for her 4 daughters to have BRAC1 mutation test.
Anyone here able to shed light on this?
Thanks in advance
Lisa
- MarlzMemberI was diagnosed on 21st May '13. Had lump out on 30th May plus axila clearance as 1 node had cancer in it. I started chemo on 1st July and will have 3 more dense doses then 12 weekly doses then 5 - 6 weeks of radiation after chemo finished. I was wondering how many people have had CT & Bone Scans and why I have not been offered these options. I think my anxiety is mainly because I am scared that I have cancer somewhere else as well. Can anyone enlighten me regarding scans we should have when we have been diagnosed with breast cancer?