Get Connected Day!

Just a quick reply re: removing and replacing the nipple. My surgeon advised me against it, even though those cells came back clear, it means leaving more breast tissue cells behind and increasing the chance of (re)occurence in that area. I was devasted, was VERY attached to my nipples (pardon the pun) but I chose in the end to have a clean sweep, as such and make my statisttical chances as low as I could. Perhaps some of the other ladies got different info or advice? This is one of the questions you would need to talk to your surgeon about if you choose to go down the path of surgery...

Thanks Ree I will talk again as a little of the  terminology I don't understand so would like you and others to educate me.

You have had it hard for a long time, I would have had them cut off a long time ago with all the testing and worry etc.

I saw a programe on SBS I think last week about a girl who's Mum died and her search for infomation, it was amazing now what they can do removing the nipple and pulling out all the breast tissue through that hole and giving you perky silicones and sewing nipple back on. Apparently there is a min chance of nipple cancer?

Another thought I don't really know is true or not???

Good luck talk soon

Heidi

Hi Heidi,

Welcome to our little place of sanity - well, mine anyway although I'm sure the other girls would agree  :O) My name is Cherie - Ree usually - and I am 34 with 3 small boys as well. Don't they get to be a handful at times! 

You have had a rough trot haven't you? Make sure that you take time just for yourself, it will make it easier to find your balance.

I don't think that I really know anything that can help you with your questions. I had thought about having the test a few years ago but put it off - young, breastfeeding devotee, regular checks, blah, blah, blah - then got caught anyway :O( I am the same as your family background, a really strong matriarchal history of BC and OC. I know one of my cousins chose to have a prophylactic bilateral mastectomy and has never regretted it but she had the gene test as well and although she never disclosed to me the results, I assume it was a very high likelihood of her developing BC.

I am sure though, that the other wonderful ladies in here with the wealth of knowledge will jump forward to help you or point you in the right direction. I hope your journey will be a positive one and if you ever wish to just chat, vent or need support, feel free to contact me.

Ree xoxox

Hi Narelle,  just wanted to say welcome to the site -- I'm glad you found your way here. :)   I'm Di, the network admin, so ask away if you have any questions, otherwise enjoy browsing around.

Just wanted to let you know that this is a reasonably old post so you might not receive many replies here.  Best idea might be to make a new post in your own blog (click on the 'my blog' link in your pink profile box on the right side of the page, and then the 'create a post' link.  That way your post will show up on the "all posts" page and others will see it (you can find the "all posts" page here: http://www.bcna.org.au/node/all/blog/network).  ;

If you want some more information about how the network works, then take a look at the 'Help' page.  There's a link at the top right of all network pages, and here's the page link if you want to bookmark it: http://www.bcna.org.au/help.

Anyway, enjoy the network and don't be afraid to try things out, you can't break anything! :)

Hi

I had a Left mastectomy 2006, right mastectomy 2008, senital nodes clear. No further treatment. I have CHEK2 breast cancer gene.

I am interested in basic reconstruction, using tissue expanders and then silicon implants.

I was wondering what the usual down time, and what the limitations/time of recovery. Time in hospital, time when you can drive or lift etc.

Also pain level of this surgey.

I would appreaciate any information

Regard,

Narelle

Hi

I had a Left mastectomy 2006, right mastectomy 2008, senital nodes clear. No further treatment. I have CHEK2 breast cancer gene.

I am interested in basic reconstruction, using tissue expanders and then silicon implants.

I was wondering what the usual down time, and what the limitations/time of recovery. Time in hospital, time when you can drive or lift etc.

Also pain level of this surgey.

I would appreaciate any information

Regard,

Narelle

glad to hear things are on the up, i still have pain in my breast now and again but not as often, i had my  lumpectomy in 2008, and my surgeon said my breast would be changing for a good couple of years.  i almost think now the operated breast is bigger than the other one, strange the way our bodies react, but if there is one thing i have learnt from bc, is to now ask the doctors questions if there is anything worrying me (even if it is a niggle thought).

Take Care Moira

this is an added p.s

....just wanted to know if you will accept my invite as a friend, and hmm...we are about 2 hours distance from each other(give or take a few minutes, traffic wise)  ...but im here if you would like to chat, or talk on the phone..i dont mind...i just think its wonderful that you are within meeting distance..if you get what i mean

anyways...the offer is there

Caron x

Hello there Lynne,

Thankyou for your message...lovely to hear that my message brought a smile to you. Congrats to you on the selling of your home and your new found friend, we can never, ever have too many friends...its a blessing, isnt it :)

Im located in Morwell (this site has it down as Hazelwood, something to do with the post code area number i feel, but its Morwell). Today is the 1st day that i have actually seen improvement, from having side effects of my 1st chemo treatment on the 11th Jan..its taken a while, and its been a rough time, but im here, and as i sit here today...im seeing the other side, not normal ..but not in that deep dark hole that i was in. So its an improvement.

I dont have pain in the area where my breast was removed, but i have alot of numbness. My pain is associated with having the anxillary clearance done, numbness and tingles and pain in the underarm and arm itself - i have been told its ok, that everyone is individual in their own healing time, and its not infected, i dont have lympodemia ...its just taking its own time to heal, soo...i have to rest, not try to do to much excersise(although still doing the things that i was shown to do, and massaging the area too), with trying to get the muscles working again...patience, patience...

I would maybe ask your Doctor about the pain..just as a precaution, and to ease your mind, that all is ok?...but thats just a friendly tid bit from me to you :)

I do hope that pain subsides, and that you are kept safe

take care

~hugs~

Caron xx

Hi Lynne, congratulations on selling your home! Bet it's a huge relief! So where are you living now? Great to hear you have a new BC buddy next door! Yes, some pain at the surgery site can be normal...I know I've experienced this from time to time. Perhaps mention it at your next check-up though. Hope all is well Lynne, Celeste xx