Forum Discussion
mum2jj
10 years agoMember
Five years and counting :)
Well I have finally got five minutes to gather my thoughts after a busy couple of weeks. March 31st marked 5 years since my mastectomy following my recurrence of triple negative breast cancer just 18months after initial diagnosis and 6 months after completing all my treatment. What a scary time that was for me.
However I am not telling you this to scare you, especially those who are newly diagnosed. I want to let you know that even if the worst does happen and the dreaded BC returns it can often still be treated. Yes I went on and had more surgery and more chemo, no it wasn't the best time in my life, but I am still here to tell my story. I feel blessed to live in a country where treatment options are available to us.
I always get what had been described to me as scanxiety when I have to go for tests and check-ups, especially as I had lymph node involvement at first diagnosis 6 1/2 years ago. However the relief I felt when I saw my surgeon last week and was given the all clear at the five year mark was immense. I will try and attach a picture I took right after my appointment. I thought at five years I would be put out to pasture and seen no more, but she said no they will continue to monitor me for another 5 years. That's ok, I kind of like the idea of that, especially being triple negative and unable to take hormone blockers.
I spend most of my time facilitating the breast reconstruction group but still pop in here when I have time. I enjoy reading all your posts. This is such a special network where we all get what we are going through because we've all been there. It is so lovely seeing the support given to all members whatever stage we are at in our treatment and recovery.
Hugs to all you special ladies.
Paula xxxx
25 Replies
- socodaMember
Hi Paula Congratulations!!!! That's excellent news for you in particular and also for your nearest and dearest. Certainly a fantastic reason to celebrate. Yayyyyyyyyy!!!!! Big hug xx
- mum2jjMember
Thanks Anne-Marie, Yes I was very happy and emotional at the time after receiving such good news.
Paula xxx
- mum2jjMember
Hi Kath,
That's why I like to share, we can beat this disease, even if it visits again!
Paula xxxx
- LITHGOW1950Member
Great post to read Paula.....so happy for you. Love your photo....beautiful big smile and you sure have plenty to smile about.
Anne-Marie ??
- mum2jjMember
Hi Lyn,
Yes, feels great. Oh yeah, forgot the lymphedema!! Yes feel free to message me about it.
Paula xx
- mum2jjMember
Thanks Jane... Love a good milestone.
Thankyou for all your support, It is so appreciated.
Paula xxxxx
- mum2jjMember
Thanks so much Christine.
Feels good.
Paula xx
- mum2jjMember
Thanks Rowdy, love a good happy dance. I love this picture as it's full of emotion. I wanted to capture how I felt. I had tears in my eyes when the Dr said all my tests were clear. I had to rush straight to the bathroom afterwards and took this in there as I wanted to capture that feeling and send it to my family.
Hugs to you.
Paula xxxx
- mum2jjMember
Hi Deanne, I am happy to be your good news story as I know you have had a tough couple of weeks. Yes love to be at that 5 year mark especially as it was a recurrence!!!
I agree we have met some amazing ladies on this site and many like yourself who have offered words of wisdom along the way. I like to think we prop each other up as needed.
I did manage a little celebration with my family and two other families who are really close friends of ours.
Hugs to you.
Paula xxx
- primekMember
Thankyou for sharing and it is fantastic to read even if it does recur....it doesn't mean we can't be treated or even cured. Kath x