Forum Discussion
steplightly
8 years agoMember
Hi Everyone.. was going to start another thread.. and may still do so about this whole issue of Centrelink and DSP and other payments but wanted to throw something around here. So please bear with me.
I have literally just come up with an idea to possibly step towards a change. I know this may take some time to implement as it will require lobbying government, local members etc but here is what I am thinking in a number of ways.
1. Could BCNA employ an advocate, lobbyist or just raise awareness through media of this issue for women and men to bring it into the public arena
2. I wondered about suggesting a "DSP Light" for those needing it, at any time, from time of diagnosis, through initial treatment and then ongoing follow -up, to be reviewed 12 monthly as to status for work. This could also be for others with Chronic issues but currently deemed ineligible. The collective team players could document the medical side for the Centrelink powers that be and a review form could be developed for completion by them at different stages as they are the ones with the fullest knowledge of what stage of treatment, care or intervention people are in.
3. At review times it is the specialist team who take the responsibility to evidence what is happening for the individual including any social worker, psychologist, physio etc. They already will have follow-up reviews with patients at regular intervals and as new things develop as side effects of treatment or results of surgery etc they are on the ball with medical evidence immediately.
I was feeling so sad and frustrated this afternoon as I read this thread and there seems to be limited resolution, so just wanted to throw my thoughts out there and see what people think. As if this crap cant be humiliating and debilitating enough for people and the hoops and hurdles we are asked to jump through when there is precious little energy(physically, mentally, emotionally and practically) which should be focused on recovery, treatment, care of self or family and less stress.
I would be willing to put my hand up to work with a team of people on this.. but would prefer an overarching organisation to take the lead of it.
Anyway.. just my prattle.... Hugs to everyone.
I have literally just come up with an idea to possibly step towards a change. I know this may take some time to implement as it will require lobbying government, local members etc but here is what I am thinking in a number of ways.
1. Could BCNA employ an advocate, lobbyist or just raise awareness through media of this issue for women and men to bring it into the public arena
2. I wondered about suggesting a "DSP Light" for those needing it, at any time, from time of diagnosis, through initial treatment and then ongoing follow -up, to be reviewed 12 monthly as to status for work. This could also be for others with Chronic issues but currently deemed ineligible. The collective team players could document the medical side for the Centrelink powers that be and a review form could be developed for completion by them at different stages as they are the ones with the fullest knowledge of what stage of treatment, care or intervention people are in.
3. At review times it is the specialist team who take the responsibility to evidence what is happening for the individual including any social worker, psychologist, physio etc. They already will have follow-up reviews with patients at regular intervals and as new things develop as side effects of treatment or results of surgery etc they are on the ball with medical evidence immediately.
I was feeling so sad and frustrated this afternoon as I read this thread and there seems to be limited resolution, so just wanted to throw my thoughts out there and see what people think. As if this crap cant be humiliating and debilitating enough for people and the hoops and hurdles we are asked to jump through when there is precious little energy(physically, mentally, emotionally and practically) which should be focused on recovery, treatment, care of self or family and less stress.
I would be willing to put my hand up to work with a team of people on this.. but would prefer an overarching organisation to take the lead of it.
Anyway.. just my prattle.... Hugs to everyone.