Forum Discussion
danielle_ghilar
14 years agoMember
Being younger
Hi ladies,
I have been doing a study with the cancer council recently. They are interviewing people diagnosed in between 18 and 24. They are looking into how they can make treatment and support groups...
Stacey_S
14 years agoMember
I agree with much that Sam said. Just yesterday I had an appointment with the oncologist and it is kind of at the point now where I really dont bring up too many issues for the reason that usually I get told its not too bad. Just yesterday the oncologist gave me the "other people wake up in pools of sweat from hot flushes so yours arent really that bad" Makes me think whats the point in even mentioning them. I feel like a lot of symptoms are swept aside because there is a belief that because you are young you can handle it, and by handle it, I mean suck it up.
I also stuggled with support groups. I actually went to support group for young women with breast cancer but the max age was 50 yrs. I understand that may be young for the majority of people with breast cancer but the concerns of a 30 yr old and a 50 yr old are worlds apart.
Fertility is a major concern for many of us. Oncologists are obviously focussed on getting rid of cancer, which they should be. I am now trying to move on but tamoxifen holds me back in the cycle of treatment. We are still talking about how long im going to stay on it as we were trying for a baby when I was diagnosed. I know there is no use having a family if im not here to be part of it but its still hard.
For me also one of the hardest things has been being at an age where all my friends are getting married, having babies, or knee deep in careers. Noone else is sick, everyones in their prime and nobody gets it. I found my support networks to be extremely dissapointing and many of my friendships will never be the same. Its hard watching the world go by when yours feels like it is standing still...
Wow that felt good to get some of that out!!!