Arimidex - morning or evening
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Forum Discussion
- Hey Joannie, (love the name, it was my Mums) :)
I've been on an AI 2 years roughly, I definitely didnt have major apprehension in taking it, as in the symptoms are niggly and annoying, but not major that I worried about. I did find joint stiffness and pain on Arimidex so this year they switched me to Aromasin, well its pretty much the same, so I just put up with it. On a bad day panadol osteo does the trick and all my stretching exercises from my Exercise Physiologist helps too. I found no difference morning or night taking it either, was all the same. It takes a few weeks to kick in. I even did a trial off it for 6 weeks and kept a diary as per my Oncologists request. I was better off it, BUT after seeing my Surgeon last week, he said it reduces my risk of recurrence by 40-50% what? ok so I have no problem taking it. I also think too its a combination of chemo side effects and menopause then throw in the AI that cause the symptoms.
I also take Magnesium in water daily, Vit D, C and Caltrate, the magnesium absolutely helps. xx Melinda - My Onc suggests Panadol Osteo for joint pain and I find it sure helps
- Out of interest the side effects I have had are joint pain , hot flushes , high cholesterol and a tendency towards the blues. I no longer drink aerated drinks on advice of specialist as it contributes to bone thinning .I don’t think it makes a difference when you take an AI just that we do take it daily
- Whilst on another AI had same fear and reluctance to start taking it. Thus far for me am managing but yes I have had side effects - the most worrying was the almost trebling of my cholesterol. If it helps these are the supplements I take to counter bone thinning and joint pain - 2 Caltrate Bone Health daily ( 1 morning 1 late afternoon) which as well as Calcium and Vit D also contains Magnesium and other stuff to help my bones. On advice from my oncologist I take 1. Krill oil tablet daily for joint pain ( that’s all he advised although the chemist recommended panadol osteo which I have yet to take/need)I will not take statins again to lower cholesterol as they caused problems for my thinking/ communication- I thought after 6 months on them I had dementia- 3 weeks off them I was back to normal so now just take low dose aspirin. I find a daily 1 hour walk a great help - some days it’s not easy but find after a while I can walk thru it.I also do a gentle stretch/balance class twice a week which involves light weights.Further have done 5 weeks of the free 8 week YWCA Encore hydrotherapy program which I enjoy being in a big warm pool as well as meeting other bc ladies - it can be done up to 4 times at any stage post bc diagnosis ( including years later) as long as 12 weeks post surgery.Finally I was already osteoporotic and had had a fracture so have 6 monthly Prolia injections.In a nutshell I cannot emphasise enough the value exercise has brought to me whilst on these tablets - I have never been keen on exercise and it’s not always easy but it makes a big difference to my physical and emotional well-being. I have been on Letrozole for 4+ months and will persist as that also seems to be the key as many on this blog have said the body adapts. In the hope this my help.
- I'm so glad to read that other people felt like i did! I did NOT want to take Anastrazole or anything! So i had them sitting on the kitchen bench for 2 weeks before I took the first one - 2 weeks after i finished 4 weeks of radiation. I have been on them nearly 2 weeks and haven't noticed any major side effects YET but i know it is very early days. I already have joint pain from arthritis (have 2 TKRs in the last 3 years) so knowing if it arthritis or the drug is difficult. I take Panadol Osteo regularly and thanks for the reminder about magnesium, Janine G. I am constantly tired and have been for years so, again, don't know what might be usual and what might be the drug. I make sure i have the tablets in the morning with food to try to avoid any possible nausea. I'm motivated to do more exercise and activity from what people have said here! I'm hoping that i will successfully navigate this journey with minimal impact from the drug! It's been good to read your experiences on this forum - thanks.
- Good on you Joannie
- Well done Joannie! We all understand the courage that took! Wishing you all the best. Jane xx
