Anyone with daughters?.

My daughter was talking about a double mastectomy as a preventative but changed her mind after the gene test came back negative for Braca and after consulting the surgeon. I wasn’t involved in her decision making as I thought she should sort it out herself based on medical advice. 

Hi there ladies thanks for your input. I was triple neg too @SoldierCrab as you may remember   I have another appt with oncol next month and surgeon in April so will discuss with them again then. She is confident with her self testing but I think I would be keen for her to have the ultrasound done regularly and Is anyone’s daughters considering a double mastectomy with immediate recon in the future at all as a preventative? Just out of curiosity?  I was negative for the gene therefore our kids won’t be tested and she is classed as increased risk. We have no bc history in our family thanks for the feedback. Margie xx

Hi my 36 yr old daughter has commenced testing , mammogram and ultra sound , and plans to test every 2 years on advice of my surgeon who she consulted separately. There are three generations of bc, my maternal grandmother, my mother and me. Grandmother was 39,mother 82 and me 62 when diagnosis. My daughter apparently has increased risk due to family history. I’ve tested negative for Braca but taking  part in a study as it seems something is going on in our genes.

Nat's breast surgeon has recommended both her sisters be checked asap because of her young age at diagnosis. Nat has one older and one younger. the older one has had her mammogram and we waiting for the younger one to turn 18 which she will have both mammogram and ultrasound. they will be checked every 2 years from now on.

Yes. The time frame of 10 years is correct but mammograms aren't beneficial in women under 40. That's why a referral to a breast surgeon can plan what testing would be best.

My Mammy had breast cancer and we were told to start getting checked 10 years from whatever age she was at time of diagnosis. Not sure if this is still what they say or not. 

Three daughters   Surgeon didn’t recommend test and oncologist said I should think about it more as it can have implications in the future ?  Eldest daughter said she wouldn’t want to know so that decided it for me at this stage.  I don’t think I have the gene I think it was just shitty luck or good luck depending on view as found early.   

Hi @onemargie
I have 2 daughters and 5 g/daughters ... I was TNBC my surgeon told me they should be tests approx 10 years earlier than my diagnosis .... so that would be at 42 for them all... I have made sure they know how to do self exam and I was not eligible for the free testing and therefore didn't get it. I am the first one in family with BC 

That’s supposed to be initial assessment not invalid assessment too bloody spell check! X

Hi there @Janny54 I had the genetic test as I was under 50 when I was diagnosed and had no family history.  Your GP surgeon or oncol can do do you a referal to the Genetic clinic in your state mine was at the RbWH in Brisbane. They do the invalid assessment and decide whether you qualify for the test then if you do you go there and see them for a consult then the results take around 6 weeks to get back. Hope this helps.  and thanks for the feedback regard8ng my daughter she is very conscious of her boobs but I will suggest the ultrasound as well thanks heaps. Margie xx