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Anna-Marie's avatar
Anna-Marie
Member
10 years ago

Zoladex and CFS

Started tamoxifen in July 2012. Was taken off tamoxifen in March 2015 as I was having a uterus full of cysts really fast and was having D & C surgery each year. Had a break to determine if I was in menopause using blood tests. They say I am not fully in menopause. I turn 50 this year. So am now on Zoladex injections as my hormone treatment. Have been on it since November 2015 I am suffering very strong pain all over. My Gp has given me a 2 week course of prednisone to see if that helps as panadeine and even panadeine forte not completely taking the pain away. I have had CFS with a symptom fibromyalgia for over 10 years now so all my cancer treatment has hit me harder than most others. 

I am interested to hear from anyone with experience of Zoladex. I have also noticed an increase in fatigue and a constant headache, nausea occasionally. The overall body pain feels like bone and muscle pain.

 

2 Replies

  • adean's avatar
    adean
    Member
    10 years ago

    I had the same issues with zoladex, I had a hysterectomy and my goodness did I feel so much better once the injections stopped, now on femara much better also than tamoxifen . 

     

     

  • iserbrown's avatar
    iserbrown
    Member
    10 years ago

    Hi!  I am on both Tamoxifen and Zoladex. 

    Zoladex is a monthly injection the abdomen.  I suffer from aching bones, fatigue and generally feeling crappy for the first week or so after an injection.  Tamoxifen, taken daily, I assume is giving me occasional hot flashes.

    I've also had the D & C which has given markers for the next round of scans to see if there are any changes. 

    I too have fibromyalgia but haven't had those symptoms in a long time..........it originally came about after spinal surgery.  Now I do sound like a crock!

    Hang in there and hopefully the steroids will help settle some of the discomfort as your body adjusts to the new treatment regime.

    Take care

    Christine xx