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SamzRusty's avatar
SamzRusty
Member
13 years ago

Yesterday was 14 days...

Hi Ladies,

Just a quicky today.

Yesterday was 14 days since my 1 dose of AC. Still feeing good, but very tired. 

So last night in the shower I had a BIG hair loss. Everything downstairs is almost gone & if I pich the hair on my head, it'll come out. I was 100% prepared for this to happen, that's why I shaved my head, however, I wasn't expecting it until after my 2nd dose. Did anyone else lose big amouts of hair quickly?

The mouth ulcers are starting to really bug me as they've headed down my throat. Still doing the gargle & Biotene routine 6 times a day. The food is my problem, feels like razor blades when I swallow, even jelly scrapes.

6 more months...... :)

Chat soon, Sam xoxo

9 Replies

  • Hi Leanne,

    I get my BRCA test results back next week, my oncologist has indicated that even if the results come back negative, she'd like me to consider the surgery anyway.....wow. I'd be interestsed in finding out more about the reconstruction process, obviously it's not an easy process & sounds like it takes quite a bit of time. 

    I have my 3rd dose of AC next Friday, I'll get straight into the ice. I have lost most of my taste now. My hair loss happened on day 14, it's almost all gone now except for my level .5 buzz cut. 

    Hope to hear from you soon, Sam x

     

  • Hi everyone. and welcome. I was diagnosed in Nov 2012 with BC & had a bi-lateral mastectomy because I have the BRCA 1 gene. Started reconstruction same time with tissue expanders. My chemo was FEC & hair loss was rapid around days 18 . My son gave me a no 1 & when I got home my dad shaved the rest off. I found ICE during chemo day helped my mouth sores but not until round 4 was I told about having ice. My last chemo was on 1st May & on Mothers Day I developed Febrile neuropenia & spent 8 days in hospital.  My hair is steadily growing back ( grey with bit of curl ) my eyebrows & below as well.  I am still having saline breast fills

    which I find painful but I also have Fibromyalgia & my surgeon thinks makes the pain worse. Hoping to have implants done by xmas.  I hope this is interesting to some of our new members and welcome to this site. Remember - we are all in this together.  Leanne  Xxx

  • I didnt get them down my throat, but I switched to salt with bicarb and rinsed about 5 times a day.  I got oral thrush the first time, thats probably what Mich remembers.  I dropped sugar from my diet and never got it back again.  A friend of my into alternative stuff said to mix a teaspoon of cream of tartar into my smoothies for a week, and thats what his girls in his family to for thrush ( I did it,, all of it, it seemed to work).  I lost my hair quickly, and even my eyebrows and lashes went.  So annoying.  Get eyedrops for lubrication if you lose your eyelashes.  There is a special gel you can get from the Pharmacy for mouth ulcers thats behind the counter.  Damn forgotten its name.  I wore a cap to bed to sleep in all the way through, got them from the cancer council, and when the stubble fell out, it didnt go through my bed or pillow.  I am now into my 9th month since the day I found out I had cancer, and my hair is back, about 1 cm long.  Eyebrows and lashes are back! X Bel

  • My hair loss was very quick also! I lost ALL my hair on day 14 after my first round of FEC. My eyebrows and lashes held in there until a bit later.

    For mouth issues I used a bicab soda and water garle. Tasted pretty yuck but eased and mouth issues. If your throat stays sore it might pay to go to the GP. You dont want to risk infection.

    xo Christie.

     

  • Hi Sam My third treatment will be 18 July. I have mine on a Thursday so my wonderful hubby can be around for a few days over the weekend as he works away from home 3 or 4 days a week. With regard to the sore throat, I did have quite a few lemonade ice-blocks and lemon sorbet for the first few days after the second dose. Maybe this helped prevent the ulcers or maybe it was just different side effects this time. Maybe cold things would sooth things for you. Deanne xoxo
  • Hi Deanne,

    We sound like we're pretty close in out treatments. I'm doing mine at Concord Hospital. Treatment 2 is 25th July. I've changed my treatments from Tuesday to Friday so my hubby can be home with the kids while I hang out in bed. 

    Here's to hoping the ulcers ease off & the meds for my next dose make things easier

    Sam xoxo

  • Hi Mich, My husband said the exact same thing about the chemo working. I've been colouring my hair black & purples since I was 18, I'm looking fwd to seeing what I get when it grows back. Hoping the chemo kills the grey!!!

  • Hi Sam I lost my hair pretty much as you have described on day 14 after first dose of FEC. I had not shaved my head though I had cut it short. Very messy! I quickly had it shaved that day but found my head was very sore for about a week as the hair continued to fall out. At least you know the Chemo is working and hopefully having just as big an effect on any cancer cells lurking around! I had the same problem with throat and mouth ulcers too. I just used warm salty water and brushed my teeth with bi-carb toothpaste. Good news though, the second dose of Chemo did not result in any mouth ulcers or sore throat so far (day 13). Still using salt and bi-carb though! Hope you find it better next time too! x Deanne
  • Hey SamI am glad you are doing reasonably well sweety.  Bel McKenna had major mouth and throat issues I think so she may be able to give you some feed back on this.I think you will find that most of us pink sisters pretty much started losing our hair 12 - 14 days following our first chemo.  It just shows how quick it goes to work killing off those cancer cells (and good cells unfortunately) so that is a good thing.I know you say you were prepared for the hair loss which I know I was but you are allowed to have a lil cry and grieve for the loss if you want.  Remember it does grow back and normally starts around the time of your last chemo.  It may come back a different colour and curly so that is always exciting to look forward to.Keep looking after yourself luvy, lots of love,Mich xoxoxo