Weight gain

@Mic80 I really wouldnt put too much energy into how you will be with Tamoxifen. Just focus on chemo first and a day at a time. We can never pre-empt how we will be with anything, just be open and most of all nurture you through it. I had 4yrs on tamoxifen and didnt notice anything really, but again that was pre menopause. 4yrs later another diagnosis, chemo and Arimidex and Aromasin is a different story for many reasons. You dont know until you try and see how you go, then you can work your way from there. 

@"Kiwi Angel" said it exactly how it is for me now...don't sleep, constantly fatigued, in pain (which I believe is a combination of chemo, menopause and the AI) and I work full time so exercise is exacerbated and near impossible. The Professionals are great at telling you what you should do! lol but the reality is very very different. They have a very long way to go to get these medications even half reasonable for people to have quality of life. I work incredibly hard just to get up everyday and work, unfortunately theres not alot of choice...again something the professionals don't factor into survivorship.

So...all the best for treatment, go smash it!!! :) hugs M x

Thanks guys xx
feeling very nervous about the tomixfen...
got to get through the next 6 months of chemo first so prob best to just focus on one step at a time xx

It certainly is @"Kiwi Angel" it certainly is. The docs tell me it's another thing that doesn't happen on Tamoxifen.Again, 5 minutes on google and it's not that rare.  Seems to go one way or the other.  I've given up talking to them.     Not that I am complaining on this one LOL.   

I lost 10 kilos during chemo. Any deviation from my normal exercise pattern tends to result in some weight gain (femara not tamoxifen). Walking on holiday perfect antidote. 

It’s amazing how it affects all so differently. @kezmusc u lose weight but u have other side effects that are worse than mine. Survivorship appears to be a trade off  :|

I put on 4 kgs through chemo.  Started Tamoxifen and lost 10 in a matter of months....go figure.  At least it has one good side effect. Can't think of anything else that could have done it.  Definitely wasn't diet or exercise :smile:

Not it vain at all!! This forum is about asking any questions, so go for it @Mic80. I’ve been lucky, my weight hasn’t altered from when I began this s*%t trip. I’m on Letrozole though xx

Yep, not vain at all!!  I am like @"Kiwi Angel" - my weight has changed - it can fluctuate 1-2kg in a week, then go back down - but my body shape has changed big time.  2 big rolls of belly flap ..... and I am reasonably active.  I am on exemestane (currently on a 4 week break tho and may go onto anastrozole.)  We'll see what the Onc says!

@Mic80 - not vain at all. I’m the same. I put off some weight during chemo and now have been on tamoxifen for about 10 months and can’t shake it. A lot of it is symptomatic of being hurled into menopause at the age of 44. I was a regular exerciser and full of energy pre cancer but since menopause has kicked in I can’t sleep, feel exhausted all the time so can’t get up to exercise and if it so I pay for it as it makes my joint paint worse and I have a gross little menopause belly. It sucks! 

@Mic80 not vain at all!!! like @Zoffiel I did not gain any weight on Tamoxifen but Aromasin OMG!!! I too am like the neverending Michelin Man...sooooo ANGRY!!! it makes a difference if you are pre menopausal you should be ok. Its when treatment puts you into menopause!! then the AI well...its impossible!!!