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Cafrini60's avatar
Cafrini60
Member
7 years ago

TUG Flap Reconstruction

Good Afternoon to all. I am new to all this and have been told about this forum by my breast care nurse.
I was diagnosed with invasive lobular breast cancer in September and as a consequence had a bilateral mastectomy and a TUG flap reconstruction. I am hoping to hear from any one else that has been thru this procedure, I am finding it very hard to find anyone here in Australia.
If anyone has had to operation and is willing to pass on some information about their experience I would greatly appreciate it.
I do feel quite isolated as this type of plastic surgery seem to be very new.

28 Replies

  • Hi @Cafrini60, the links from @primek are a great start. I actually think the photo story about a DUG flap is a misspelling and should be TUG Flap as it is a very similar procedure. You are right that TUG Flap surgery is less common and so it has been hard to capture these stories, so if you are willing, we would love to hear more about your experience (as I understand you have already had the procedure?) in the Choosing Breast Reconstruction group.

    A couple of other options to connect include joining the closed Reclaim Your Curves (breast reconstruction peer support) facebook group (which is run by the same admins as the reconstruction group in this network). This group is very active, with over 1300 members (mostly from Australia) and hopefully would help join you up with others who may have had the same surgery. To request to join the group: https://www.facebook.com/groups/reclaimyourcurves/ 
    If you're not on, or don't want to join Facebook, I could ask the group on your behalf to see if anyone has had a TUG reconstruction and would be willing to contact you through this forum or otherwise.

    Also, was yours the first TUG procedure that your surgeon has done? If not, can the surgeon connect you with others s/he has operated on? I asked my surgeon about this before having my reconstruction in 2014 (when DIEPs were a bit less common) and they were very willing to put me in touch with a couple of previous patients. 

    Hope this helps. Best wishes, Jane xx 
  • Thank you very much that is very helpful, it would be nice to talk to someone else, it has  not all been smooth sailing. 
  • Hi @Cafrini60 the Cancer Council may be able to connect you with another woman who has had this procedure through their peer support program. Cancer Council can be contacted on 13 11 20 during business hours. 
  • @Cafrini60. Have you checked out the Cancer Council site?
  • Thank you for the prompt response. I have looked at those links about reconstruction but there is no mention of TUG flap 😩 I always seem to hit a wall. My surgeon chose this way as my abdomen was too thin, there must be others out there somewhere. I tried BCNA with suggestion from my breast nurse. Thanks for you help.