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Nadi's avatar
Nadi
Member
7 years ago

Trying to remember the whole one step at a time mantra

The last few weeks I have had to tell myself to take a breath and take one step at a time. My 50th birthday was a complete bust. Ended up in an ambulance with a trip to hospital and not from anything fun. Missed out on having any bubbly, due to severe stomach pain after a few weeks of having problems swallowing foods and liquids - something I had initially put down to reflux. But the pain was unbearable, worse than childbirth. So tests, tests, and more tests and lots of pain meds. Then biopsies of the duodenum (small intestine) after CT scan picked up significant thickening in sections 1, 3 and 4. Problems with the procedure meant the doctor could only get biopsy from section 1 of the duodenum. So now MRI, Barium swallow and other tests this Friday and next Monday.

Gastro doc suggested that having HER2 positive breast cancer meant there was an increased risk of bowel cancer. Has anyone else heard this? Fingers crossed the thickening is something like inflammatory bowel disease instead of the big C. On the upside, I've lost 4.5 kgs in 2 weeks. Pathology from the first sample won't be ready until Friday, so now I'm playing the waiting game while enjoying a liquid only diet. Forgot how horrible the waiting game is.

Hope everyone is doing ok.

Nadine
  • Hi @Blossom1961 and @LMK74, the good news is that it's not cancer. The bad news is it is Achalasia. All the nerves in my oesophagus have been destroyed - asked if it was chemo or radiation that contributed to that and they said they don't think so. The lower oesophageal sphincter is also not opening, both of these things mean food can't get into my stomach - it just gets stuck in my throat. It's a degenerative auto immune disease and I will never get those nerves back. I have now had a second and a third opinion and have been told that even with surgery which is the standard treatment I will never eat normal again. So far weight loss has been 9 kgs in 5 weeks as I can't barely eat and have very little liquid - just enough to keep me going. Some days I can't quite believe I've been hit with another serious illness, but for the most part it is what it is and I just have to get on with it. Learning to take it a day at a time and back on the merry go round of hospitals, surgery, specialists, tests, tests and tests.
  • Oh @Nadi, as if you haven't been through enough. I sincerely hope nothing sinister turns  up. Let us all know how you go. I hope you're feeling better soon.
     <3 
  • Hi Nadine, I hope everything worked out well. I had a nasty colon polyp that was just starting to change when they found and removed it ten years ago. I was diagnosed with Her2+ this year and both my surgeon and oncologist informed me the two cancers were not associated. I spent two weeks celebrating my 50th so you get back out there girl and finish it off. I walked down the side of a building, frontwards. I then scared the living daylights out of all the other participants by letting go of the rope and waving my arms about. Have fun!
  • Highlight is you made it to 50, happy birthday!
    Stress can drop the weight off of you. Maybe now you have passed the 50 mark things will settle down a bit. Hugz <3
  • Oh, life can be so unfair! You should have been dancing on tables for your 50th! I don't know much about HER2+ cancer, but I have my fingers crossed for you that your results on Friday are the best possible, and that there is no more pain. 
  • That's awful, @Nadi.  I hope at least that the pain is gone.
  • That sucks Nadine! I hope everything is going to be OK. MXX