Triple Negative Experience

Hi there ladies, I am also the same- was diagnosed with TNBC in November and had the lump and margin removed.  The whole experience has just been a kind of blur with every part of the experience happening a million miles an hour.  I have almost finished my chemo, 5 more to go and I am due to start my radio therapy in May but have just received the results of my BRAC test and got the news that I do have the BRAC 1 gene, so at this time I am making the big decision about Risk Reduction Surgery.  Any opinions about what I should do are appreciated.  Anyone had radio therapy? is it that bad an experience.  Hop everyone is well. thanks Jeanette 

Hi Cassie, I was also diagnosed with TNBC. My diagnosis was last Nov, 4 months ago, following the rapid growth of a lump in my left breast. I was diagnosed and had a mastectomy within 2 weeks. I was stunned and really found it hard to believe, I thought someone had made a mistake. I had no family history and have led a healthy life. When I was diagnosed, all I remember is the sombre face of the surgeon and the diagnosis, TNBC. I had no idea what that meant, when I regained my composure and did some research I was terrified. I have been through the usual ups and downs, wondering how I was going to have the strength to get through everything. My Partner and my family have been there with me the whole way and I am so grateful. I also see a councillor and had a long talk with her about this subject. The medical profession can offer no guarantees but do their best to rid the body of any cancer cells. It seems anyone diagnosed with cancer will always have that horrible thought in the back of their mind of reacurrence. I am so humbled when I hear of people who suffer the ravages of cancer treatment for years on end and willingly go back for treatment. I dont know if I could be so brave. The lack of follow up treatment for TNBC just adds to that fear. I am only half way through my treatment, but I feel much more positive now. I think being stressed and scared can only give the body less energy to repair itself and do the job it needs to do, so I am trying to enable that process. I hope you will be alright, keep in contact, Jacqui 

i am sure there will be other women on here who have had the same diagnosis, and will be able to give you information or support,  so thank you for joining the club nobody wants to be a member of, but we are all glad its here, here we have our support right from our own house, I think with all bc diagnosis, once we have gone through all our treatment, and its finished, its a kind of anti climax, as now we are on our own with only checkups once a year, so we are all scared in case something comes back, and its not picked up, i think as time goes on, that fear just gets a bit less room in our minds, although i think everyone on here, would still be thinking its a possibility of re occurence. i have decided to keep putting it to the back of my mind, and live life, a lot of positives have come out of bc, and now i think of me time, and dont feel guilty about it anymore. some women use meditation, but remember we are all different, and i think we as individuals need to find the way that suit us, thats where this site comes in good yet again, different advice and options from a great bunch of women, and hopefully we can all pick up ideas we might not have otherwise thought of., Please keep in touch with us, by helping yourself, you can help others. Take Care Moira XX