Triple Negative battle

Wow dayna. I only got 1 year post chemo unfortunately. Hope to beat it this time though x

Hi NARELLE Boy do I hear ya loud and clear !!! I was diagnosed TNBC 29/10/2010 and had 16 rounds of chemo . 4x AC then 12 x paclitaxol . Then 25 hits of radio therapy ! It does end !! I know it doesn't feel like it right now . I would be in tears because I was so fearful of the cannula . ... Looking back I think a port may have been a good idea . Maybe ask your Dr as it could take some of the anxiety away! Also did they give you Ativan to take before hand !!! It will help with the anxiety .Ativan is my friend . Our prognosis is better after 5 years with TNBC and we also don't have to take that pesky tamoxifen so I guess we have to look on the bright side Best wishes you CAN do it xox .

Hi NARELLE Boy do I hear ya loud and clear !!! I was diagnosed TNBC 29/10/2010 and had 16 rounds of chemo . 4x AC then 12 x paclitaxol . Then 25 hits of radio therapy ! It does end !! I know it doesn't feel like it right now . I would be in tears because I was so fearful of the cannula . ... Looking back I think a port may have been a good idea . Maybe ask your Dr as it could take some of the anxiety away! Also did they give you Ativan to take before hand !!! It will help with the anxiety .Ativan is my friend . Our prognosis is better after 5 years with TNBC and we also don't have to take that pesky tamoxifen so I guess we have to look on the bright side Best wishes you CAN do it xox .

Hi Narelle,

I went through surgery, chemo and radiation when I was 42, for triple negative breast cancer. It was a very scary time and I read far too much on the internet. I was lucky enough to go to the National Breast Cancer Summit in Melbourne and I listened to Dr Fran Boyle. She said that her opinion was that Triple Negative was a fairly new term and the statistics available were from a fairly small sample of people.

It has been a hard road back after cancer but I try to look on it as a positive experience. I learnt so much about myself and got to meet some great people. It was a wake up call for me in many ways.

Good luck with it all Narelle and keep posting on here - that was my lifeline!

Mel

 

Hi Narelle

I was also diagnosed with TNBC  August 2011 and operated in Spetember 2011. After 4 rounds of chemo and the radiation for 33 days. I had probelms with finding veins they can inject to and I am so scared of needles.I had no lymph node involvment either.

 

I found if I read that was in the internetc I was going to go crazy. But I read many things anyway. These days most people recover. Lots of rest between help. I found work helped me to keep my mind off the little nagging things but depends on each person.

 

Wish you the very best.  It is hard we don't have a tablet that we can take for this. I did radiation before chemo and found even that along made me tired. May be the drive to the hospital before work early in the morning :)

 Good luck with it

Keep your chin up it finishes and then you can start recovering.

 

Chamini

 

 

I found a book from the US site that simplified everything

Big hugs Narelle... Keep on keeping on. It will be over before you know it xxxx

I was diagnosed with TNBC last March had lumpectomy and sentinel node . No lymph involved. Had 4 rounds TC and 6 1/2. Weeks radiation . There is a group on here which is great . Also there is a print out on TNBC as well. I was overwhelmed by my diagnosis but was good to get on here and talk to other ladies with TNBC . Good booklet available from a English site helped me a lot as well. Wishing you all the best. Hard we don't have any other treatment other than chemo and radiation but hoping they find more treatments soon. All the best Deb

I was diagnosed with TNBC last March had lumpectomy and sentinel node . No lymph involved. Had 4 rounds TC and 6 1/2. Weeks radiation . There is a group on here which is great . Also there is a print out on TNBC as well. I was overwhelmed by my diagnosis but was good to get on here and talk to other ladies with TNBC . Good booklet available from a English site helped me a lot as well. Wishing you all the best. Hard we don't have any other treatment other than chemo and radiation but hoping they find more treatments soon. All the best Deb