Forum Discussion
bjp
10 years agoMember
triple negative 2008 and again in 2014
I would love to connect with someone who has had triple negative more than once.
Great to hear long term survivor stories - read something on a US website of someone who has survived 6 bouts of tri...
bjp
10 years agoMember
Paula,
Thanks for the reply - you are the first person I have been in touch with with two triple negative. Even asked the Cancer Council for someone on their volunteer list and there was no one in Aust or NZ.
I have been travelling really well thinking I will live forever but then found Cart-Wheel, The Centre for Analysis of Rare Tumors.....says triple negative fits their area of interest. Also, was reading about funding requested by QMIR Berhofer which made triple negative sound really bad.
This has just made me feel a little less confident. Funny what will do it.
I have had quite an easy time with only 3 x lumpectomy and 30 x radiation the first time and 1 x lumpectomy on other side and 25 x radiation the second time. Declined chemo when offered second time due to very small increase in chance of survival.
My 2 year mamo is coming up in July - always a tense time as you would know.
Beverley