Trial Drug
Hi All, So was with oncologist on Monday and was offered to go on a free trial for a new drug. Just wondered if anyone knew anything about it. It is called Neratinib. Apparently it has been released ...
Forum Discussion
"1.4% reduction in distant metastasis compared to the placebo"
"Grade 3 diarrhoea which basically puts you in hospital plus the chance of kidney failure!!"
I'm deeply disturbed by some of the trials and treatment options offered. The potential benefit in some cases is small, yet probable severe reduction in quality of life is high. Someone, somewhere, some other humans, have decided.. "yep, happy with this product, lets trial it on other humans"... then an ethics committee has said "yep, happy with this probably small benefit, but too bad about the side effects.. lets approve the trial"... :'(
Highest respect to those who battle through terrible side effects of trials and marginally effective drugs. But, surely there has to be a better way? If also find it sad that those who seek alternative therapies - like traditional chinese medicine practitioners - can sometimes not find a lot of support, or worse from the western medical system.
I wonder if some of the money put into cancer research is looking into translating research conducted by others? Apparently not a lot of Chinese research into cancer is translated. If only these companies (or governments) would put their efforts into trials for natural products, something that works in harmony to bring the body back to balance. The world needs to come together and find a new way of making the medical world work better. Better patient outcomes before patents and profits.
Best wishes to everyone with whatever treatment journey they choose. xx
"Grade 3 diarrhoea which basically puts you in hospital plus the chance of kidney failure!!"
I'm deeply disturbed by some of the trials and treatment options offered. The potential benefit in some cases is small, yet probable severe reduction in quality of life is high. Someone, somewhere, some other humans, have decided.. "yep, happy with this product, lets trial it on other humans"... then an ethics committee has said "yep, happy with this probably small benefit, but too bad about the side effects.. lets approve the trial"... :'(
Highest respect to those who battle through terrible side effects of trials and marginally effective drugs. But, surely there has to be a better way? If also find it sad that those who seek alternative therapies - like traditional chinese medicine practitioners - can sometimes not find a lot of support, or worse from the western medical system.
I wonder if some of the money put into cancer research is looking into translating research conducted by others? Apparently not a lot of Chinese research into cancer is translated. If only these companies (or governments) would put their efforts into trials for natural products, something that works in harmony to bring the body back to balance. The world needs to come together and find a new way of making the medical world work better. Better patient outcomes before patents and profits.
Best wishes to everyone with whatever treatment journey they choose. xx